Balance! Does It Bother Anyone Else? | MyEpilepsyTeam

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Balance! Does It Bother Anyone Else?
A MyEpilepsyTeam Member asked a question 💭

I like to walk and the other day I fell I guess I got off balance I really don’t know but it was like I could see it coming but I couldn’t catch myself

posted September 11, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I also had to reduce my dose on xcorpi 250mg was just way too much everything was constantly spinning along with everything else. I'm now on 200mg and have been for a few months the original plan was to get to 400mg but dont know whats going to happen now. I have an appointment with neurology team soon so will be interesting to see what they think now.

posted September 13, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member that's why they take you to a lab and do blood tests, to see if you're actually drunk, high, or just have balance issues.

posted September 12, 2023
A MyEpilepsyTeam Member

Yes, I've had issues with this. I think it may have been because I was on a high dose of Tegretol which I'm no longer on but having said that I do still get some balance issues.

posted September 11, 2023
A MyEpilepsyTeam Member

Ah yes. Balance. Well! I can dance, but I need a strong lead. I am uncoordinated!

posted September 11, 2023
A MyEpilepsyTeam Member

My balance and coordination is shocking was before meds and is worse after. My spacial awareness has got worse after taking xcorpi I'm now a very nervous passenger and constantly nag my husband when driving as I constantly think he's going to crash into something when we're actually perfectly safe. I'm best sat with my eyes closed as it ends up being a very stressful journey which then makes seizures worse.

posted September 13, 2023

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