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A MyEpilepsyTeam Member asked a question 💭
Denver, CO

I’d like to provide support for people when they wake up alone.

What would you recommend?

September 11, 2023
 · 
Reactions
A MyEpilepsyTeam Member

wellll i have a heating pad and my phone, i usually put a youtube video on or a stream, watch that with my heating pad on, i try to take deep breathes and just close my eyes first tho to just take a deep breathe you know? then i whatcha stream or youtube sometimes even music if my eyes are bothering me and i just need to chill out, if i’m out in public tho i definitely sit for a few minutes and drink some cold water, a drink you like?? just anything that can cause you to relax, try and not to be stressed you know?

October 10, 2023 (edited)
A MyEpilepsyTeam Member

Myself

January 21, 2024
A MyEpilepsyTeam Member

As my doctor says it's like temporary amnesia so being in a familiar area my brain recognizes I've learned to focus slowly on my surroundings. There's been times where the ceiling is still the floor or I need to pee and I hold the walls to walk aimlessly to the bathroom. If I'm at a hotel or somewhere less familiar it's shock and panic even when someone is there I know I know them but do not know who they are. It's frightening I take it slow and have to let my brain come back. Sometimes it's scary to think that this could happen and be permanent, God forbid. Once my son, 17 at the time , was trying ro help but I couldn't speak or see and I would only scream in pain trying to communicate with him.

November 19, 2023
A MyEpilepsyTeam Member

If I snap out I need noise as TV. I also HAVE to hav radio on when in shower
I cut my legs while shaving B4

September 22, 2023
A MyEpilepsyTeam Member

I remember just barely opening my eyes enough to feel the pain in my head get worse throbbing so much more all I could do is close them and sleep. I didn't care about the world.

September 21, 2023

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