I am on Sodium Valproate, alongside Keppra, Topiramate, Pregabalin, and Vitamin D3 with Folate(as my body gets stripped of both). For rescue meds I either get oral Clobazam, or Diazepam.

I use a seizure recovery medication. I use it when needed. If I start having cluster seizures, or more than 2 seizures that day, I used use my Recovery med. I use an Oral Lorazepam.

Sodium Valproate - is this depakote?

My son had been on it for under a year but it kept him seizure free

He went off of it due to side effects; sodium sensitivity, weight gain, swelling of hands & feet, dry mouth....

Christine, I've had to perform CPR 2x with my son as he stops breathing as well.
His MRI shows white matter from brain injury from anoxia - not enough oxygen..

This is a very scary disorder. I'm actually looking into Ketogenic diet now as I'm learning it has been very helpful for others to become and maintain seizure free.

I wish and pray for all the best to you and your Son <3

Allie