Lack Of Sleep | MyEpilepsyTeam

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Lack Of Sleep
A MyEpilepsyTeam Member asked a question 💭

I find myself constantly lacking sleep, but feel so tired, I try to stay in a regular routine, but my mind is in constant overdrive, I have focal epilepsy, (TLE) recently resigned from my job at the blood bank due to so much discrimination, even though my condition never affected my work, I was continually hounded by management telling me I shouldn’t be doing this job, I have been very stable seizure wise, and cleared by my neurologist and GP’, but was stood down indefinitely for reasons not yet… read more

posted June 17, 2023
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A MyEpilepsyTeam Member

Thanks @A MyEpilepsyTeam Member
AED’s that are prescribed here in Australia are not the same as in the US I guess, we don’t have as many options yet that are available, it takes years for approval here for some reason, I have read that Keppra can have side affects, previously tried a few others, Tegretol, Epilim, both had notorious side effects, blistering of skin and eyes and extremely high LFT’s, all of the AED’s I’ve been on make me so tired, but Keppra not as bad as the others, just wondering if I’m overly stressed out

posted June 17, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, there are a lot of AEDs available. The hard part is knowing which ones will control your type of seizures without giving you terrible side effects. And whether or not they will conflict with other medications or vitamin supplements you are taking right now. As ProudTx mentioned, Keppra can be pretty bad for some.

posted June 17, 2023
A MyEpilepsyTeam Member

Hello! So nice to meet you. I am so sorry that happened to you. I always feel like I have a lack of sleep even when I get 9 to 12 hours of sleep. I usually toss and turn at night. If I take a nap during the day, I can’t sleep at night.

posted June 22, 2023
A MyEpilepsyTeam Member

I have the same problem.my mind,goes in over drive and sometimes,I can't sleep.its normal.try the epilpsy team for support and don't anyone tell you,don't belong I that job.you are a human being,just like everyone else,just happen to have Epilepsy.

posted June 18, 2023
A MyEpilepsyTeam Member

Thanks @A MyEpilepsyTeam Member.
I had recent blood work done,
Levels were fine but my WCC low, neutrophils low, sugar just on the boarder of diabetes, and high cholesterol and trigs, high liver function and a few other things were low also, GP days it’s fine, I’m not convinced it is,
Been going through so much work stress which has made everything feel so overwhelming and never ending,

posted June 17, 2023

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