I Host A Virtual Support Group For Adults But I Would Like To Start On For Teenagers. Do You Think Teens Would Be Interested? | MyEpilepsyTeam

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I Host A Virtual Support Group For Adults But I Would Like To Start On For Teenagers. Do You Think Teens Would Be Interested?
A MyEpilepsyTeam Member asked a question 💭
posted April 7, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
You said the cord around the throat sounds familiar. I just saw where your son has asthma. That sounds familiar. After birth I acquired asthma and pneumonia.

posted April 13, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I am now 41 years old and my first seizure was noticed when I was 10 years old. So that makes it 31 years of seizures. I once had the Vagus Nerve Stimulator but it didn’t help. Now I have the Neurostimulator (RNS) but still have seizures. My mom has told me that I wasn’t breathing at birth so I wasn’t expected to live.

posted April 11, 2023
A MyEpilepsyTeam Member

I have noticed with my son, headaches, not eating, stress, and not sleeping. also he has asthma so if his lungs get infected or if he get boils infection causes fever and could possibly cause a seizure.Im on a hunt also because he just started having them 4 years ago after he had a spinal tap.

posted April 8, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had seizures ever since I was 10 years old. During childhood I had many friends but when we reached our teens everybody else could drive so I was left out of everything. So I think teens would enjoy to meet up with others who suffer in the same way. I’m now over 40 years old and I still have seizures.

posted April 7, 2023 (edited)
A MyEpilepsyTeam Member

this sounds familiar . the cord around the throat. so how old are you and how long have you noticed the seizures?

posted April 11, 2023

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