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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many EEGs Did You Have To Get Before You Were Diagnosed?

A MyEpilepsyTeam Member asked a question 💭
Dothan, AL

I had to have 2 EEGs. First one was an inpaitent EEG for 3days went no where and the hospital staff and doctors were rude as hell to me
Second on was at a diffrent hospital for only an hour and they got excatly what they needed shortly after that i was diagnosed with FLE and TLE epilepsy was put on keppra and then topamax but had to come off of those and currently on Lamictal. My offical diagnosis is Primary Generalized Epilepsy
I recall having like 3 or 4 absence seizures in a row every few… read more

February 15, 2023
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A MyEpilepsyTeam Member

I honestly don't know because at the end of my first appointment, my neurologist had me hooked up to an ambulatory EEG for 48 hours, thus I do not know at what time during that period the ambulatory EEG recorded proof that I have epilepsy. This was back in 1997. A few months ago, I had an ambulatory EEG for 72 hours to confirm that I am in a complete (no nocturnal seizures either) 9 month+ seizure free state.

February 17, 2023
A MyEpilepsyTeam Member

2

February 15, 2023
A MyEpilepsyTeam Member

I think from memory I had to have an MRI as my first point of diagnosis only because I was 4 at the time. I don't think I had an EEG until I was 5 so I think, all up it was probably just over 12 months to get the best idea of what was going on.

February 15, 2023

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