What Analogy Would You Use To Help Someone Understand What It’s Like To Live With Epilepsy? | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Analogy Would You Use To Help Someone Understand What It’s Like To Live With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
posted November 30, 2022
View reactions
A MyEpilepsyTeam Member

Epilepsy is like a stalker, you never know when it might show up. Also the medication for epilepsy takes all your energy away so you seem lazy, when in fact you’re so wiped out by your meds you just wanna sleep all day.

posted February 23, 2023
A MyEpilepsyTeam Member

I explain it like trying to describe the shape of water. It can't be done
It can only be experienced, however when you sit by a river and watch the water go by. Sometimes there a alot of undercurrents that we can't see. Sometimes there are rapids Sometimes it's peaceful and calm. It's ever changing from moment to moment and it just is. That's epilepsy. My brain is the ever changing river.

posted December 27, 2022
A MyEpilepsyTeam Member

One other thing I do every night just before I get into bed I pray to God to help all that are suffering with life and pain + ask for help for all that have epilepsy that can cause a nasty fright during the day or night, and it has helped me feel more positive at night and my nocturnal seizures have improved.

posted May 19, 2023
A MyEpilepsyTeam Member

I've always explained it as this. A misfiring of, in my case, certain receptors remain open or blocked too long. Like a plumbing issue in my brain. Certsin things don't go down and certain thing go down too fast.

posted April 20, 2023
A MyEpilepsyTeam Member

It's not that simple. The "power" doesn't just go out for a moment, then come back on. There's also the inability to concentrate, the difficult to control emotional and mental instability (especially in the aftermath of seizures and worsened by certain meds), frequent memory blanks (especially when recovering), the on and off need to sleep (really annoying when trying to run a business), the physical pains in my head and throughout my body depending on if or how I fall, all of this sometimes lasting in excess of a couple of weeks from the time of any amount of seizures, depending on the intensity and quantity of thereof. The best I can get is when I'm not recovering, and it's mostly just the memory problems, messed up sleeping cycle and emotional instability which sometimes causes me to just shut down, so I don't explode at people who didn't do anything wrong. Admittedly, finally getting to reduce my Keppra intake helped alot.
If you're fortunate enough to be able to bounce back to normal, consider yourself extremely lucky.

posted March 20, 2023

Related content

View All
How Would Youmake The World Undestand How It Feels To Live With Epilepsy
A MyEpilepsyTeam Member asked a question 💭
Relationships And Epilepsy
A MyEpilepsyTeam Member asked a question 💭
Mental Health Among Epileptics
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in