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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced Gastritis As A Side Effect Of Lamotrigine?

A MyEpilepsyTeam Member asked a question 💭
Pretoria, ZA

After seeing a gastric surgeon, and having an endoscopy done where my blood work and scope results came back fine, the surgeon told me I have inflammation of my stomach lining (gastritis). He couldn't tell me what caused it though. It had come on suddenly 2 months prior as bad stomach aches and reflux, and nothing in my lifestyle or diet had changed. I was put on to nexmazol 40mg, only to find out about an interaction later on - it was decreasing the absorption of my lamotrigine and eltroxin… read more

October 25, 2022
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A MyEpilepsyTeam Member

ChelsieKelly: Do you have a neurologist who you trust and has answered all questions that you ask?

I only mention this because too many doctors (especially neurologists) in the 21st Century USA unfortunately are not open to answering questions or giving you details (mind you my first neurologist, 1997-2005, was very good however started showing the effects of Alzheimer's to a minor degree in 2002 and only got worse. And my 2nd neurologist has Asperger’s Syndrome (however, he at least in his 70s, thus probably has no clue that he has this form of autism -- I know this well because my older brother and nephew both have it). And because of that he never uses anything besides 3 anticonvulsants (Tegretol is one of them), and when I reached the "proper" amount of the 3, he actually told me that it was entirely my fault that I had not reached a long-term seizure free state. And then told me that he did not know what to do next, thus needed to send me to EEG Long Term Monitoring. And this was the best thing that he ever did for me because I signed up to go to Brigham and Women's Hospital's EEG Long Term Monitoring, but they require that anyone who was accepted to go to the EEG LTM is required to meet with one of their neurologists first.

I was on 1600 mg on Tegretol/Carbamazepine for 24 years, and I never reached a long-term seizure free state, thus when I went to Brigham and Women's Center in Boston, my immediately new neurologist and his superior were shocked that I was kept on it for so long by 2 neurologists prior.

October 28, 2022
A MyEpilepsyTeam Member

Ive been on 700mg Lamotrigine for roughly 19 years and ive always been fine i just have my Lamotrigine levels tested every 4-6 months. Maybe speak woth your doctor

October 28, 2022
A MyEpilepsyTeam Member

Is it genetic that's probable

October 25, 2022
A MyEpilepsyTeam Member

I've never experienced it, and I have been on it for years.

October 26, 2022
A MyEpilepsyTeam Member

I've been on that lamotrigine for years and never had that problem

October 26, 2022

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