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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Whoosing Sound, Tinnitus Has Anyone Experienced This After Stopping Tegretol?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

I don't know if this whoosing sound ,tinnitus, ringing in ear is a due to taking tegretol i've read that tegretol can cause this as a side effect.
I've been ignoring it as just a side effect but I'm confused as do I get it checked out I said if the whooshing sound came back I would and it has started yesterday.
Wondering if anyone has had this side effect with tegretol?

September 1, 2022
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A MyEpilepsyTeam Member

Yes ! I had my annual physical in March.2022.
Dr. said " Your ears are full of wax ; I'm going to irrigate your ears with a solution of water , alcohol , and peroxide."
He said.

Curtis Jones

September 2, 2022
A MyEpilepsyTeam Member

They tried that on me a long time back but it gave me a rash so they said no and moved on to the next thing to try

September 1, 2022
A MyEpilepsyTeam Member

I have Tinnitus. I've developed it from having taken DEPAKOTE. I got put on depakote in 2005
when I had a real bad convulsion.
I have a high pitch ringing in my ears from the Depakote and I've still not been able to get use to it. The ringing is unbearable at times.

Curtis Jones

September 1, 2022
A MyEpilepsyTeam Member

Nope

September 4, 2022
A MyEpilepsyTeam Member

I’ve been taking TEGRETOL since 2 years old (diagnosed epileptic at 15 months), I have nocturnal, generalised focal, absence & tonic clonic seizures. I’m now 44 & I’ve also experienced this sort of whistling noise in my ear but it feels like it is going from my head to the ear (or brain to ear).
I take sodium valproate, Carbamazepine, Clonazepam and cannabis oil for my seizures but no doctor has ever found any cause yet.

September 3, 2022

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