Hope all goes well in what you do and hope best for you to and always be positive

Charlene, I just came through the 3 day video EEG. My new Neuro indicated that 3 short seizures did take place, but so much of what I have been experiencing is due to negative side effects to Briviact. (This includes causing the more frequent seizures). She gave instructions on reducing the dosage in order to get off of it. I have an appointment to see her in September, but will do follow-up care with another Neuro until that date. Yes, Pseudo Seizures were noted, but she indicated that the Briviact may be one of the causative factors. She also indicated that further surgery is not needed! PTL! I have learned to recognize external causative problems (e.g. being near a strobe light, or too close to external electrical stimulation - even from the computer). What made such a difference was that she actually listened to me!! I have so much more peace now... Thank you for listening and replying... Maire'

Charlene, I know that first 2 surgeries did really help... but I don't know why I have so much less peace about proceeding with another surgery. I've contacted a group that does specialize in the NeuroPad surgery (for more info), and really hope to hear from them soon. I'm going in for the 5 day video EEG tomorrow. I cancelled my patient care treatments today because of the fatigue I'm feeling after having some nocturnal seizures last night.... I think that I'm going to let the Great Shepherd carry me through! He alone knows what is best for me. Shalom. Maire'

Would you do it again?

Thanks Janet. I have had this test done so many times before (over 50 years!), You are right, It's NOT fun! I'm so grateful that I now have a husband who is there supporting me. (We are now married for 3 1/2 years). Thanks for the Hug that you sent my way! Here's one for you! Maire'