Based on my doctor, I might need to get two areas of my brain evaluated with intracranial EEG with the possibility to perform brain resection. Has anybody here gone through a similar process that is willing to share? Please let me know.
@A MyEpilepsyTeam Member. I’m happy that it worked on reducing my seizure frequencies down to mild and moderate ones. It just didn’t make me seizure free.
Before the surgery my Epileptologist asked if I wanted to try and Neuro brain surgery. At that point, I have already been through many medication adjustments. They would get increased, another med would get added, then that too would get increased . I finally was up to 4 meds on max dosages by my 20’s. No of them controlled me. That’s when he brought up the surgery. I was all for it . Even before I was shown the interviews to the many who have done this treatment.
@A MyEpilepsyTeam Member . It was a very interesting experience. One thing I forgto mention was was the main reasoning of the procedure. They were mapping out a closer direct location of my seizures, because after this procedure, I went to my brain surgery the next day
Never did but hope all goes well for you
@A MyEpilepsyTeam Member ,
After spotting the lesions in the MRI , helped them know where to place the Grid Electrode strips. The EEG and Grid worked together to help map out a more in-depth location of my seizure locations. Once that was all done, they able to carefully remove a portion of that area of my brain.
Thanks for sharing your story @A MyEpilepsyTeam Member. Did your epileptologist decide the lesion is in one area of your brain prior to the grid test and just placed the grid there? Did they place any depth electrodes for you?
And after the grid test when they did the surgery, did they remove a partial piece of the lesion that they had learned has minimal effects on memory, language, etc?