Anyone do the inpatient 5 day stay EEG?
I waited 6 months to see a doctor and 5 months to get this inpatient procedure, if approved .
I’m 6 weeks out now?!!
I am so nervous , mostly because I’m worried they might not be able to induce seizure / diagnosis me?
I’m so ready for more answers , this brain injury / seizures , has been a long journey..
I just want to know what we’re doing ?
So I can possibly get my Driver license back , and find a new career .
Fingers crossed 🤞
Actually, when you are in the Inpatient EEG (EEG Long Term Monitoring), the idea is to trigger seizures. However, you are in the safest place possible to have a seizure because the bed has padded on all sides, and you are being monitored at all times (except when you are using the bathroom --but even then there will be someone standing outside the door if you need help). There is always a neurologist on site and a nurse monitoring you at the nurse's station. Depending on the rules of the place you are at, you might be in the bed except when using the bathroom and even then you have an escort back and forth. This was the type that I was in. However, I have friends who were allowed to walk about, but they were being monitored too when they were doing that and you have the best doctors and nurses and techs on the staff with regards to epilepsy when you are in there.
Your EEG probes are attached to you for your entire stay (at least for those of us who were not allowed to walk around) with a long wire lines so that you can walk anywhere in the room and not go beyond the length of the wire. You also are hooked up to a monitor for your vitals. However, this is a quick disconnect when you need to leave the bed.
Depending upon how quickly you have the seizures during the five days and if you have all of the seizure types that you have, determines how much your anticonvulsants are lowered or whether there is a need for some sleep deprivation to trigger a seizure.
The biggest worry is whether you have a noisy roommate (like the noisy vitals monitor that I had which was seemingly complaining whenever I moved too much on the bed --even when not in a seizure).
The neurological team will come around each morning on rounds. And you have a button to press if you feel a potential seizure coming on (to mark the video and EEG recordings to make it faster for the doctors to look at it) and a button for the nurse.
This link from the Epilepsy Foundation has a few more details: https://www.epilepsy.com/living-epilepsy/epilep...
I’ve had both a free day and a five day EEG they are not fun but the thing is a three day you can stay at home at five that you have to be in the hospital because I have to monitor it because of your pass out any time anywhere the machine goes off and they were monitoring the cameras and see what kind of compulsion to have at night in the middle of the night everything so the cameras are on you 24 seven everything so they can monitor what it looks like facial reactions everything and that’s what we’ll hook up to the EEG will tell them so much information that it’s important once you get it done and if you don’t see it in your sleep during your sleep anytime so if you know you’re going to have an aura you will probably press a button to alert the nurses if you think you’re gonna have an aura press a button do what they tell you to do and everything directions once you’re in the hospital and everything but when I had mine that’s what I had to do press a button when I felt like I was gonna have it, didn’t even realize I had no warning signs for mine anymore not at all nothingSo have a great day and I hope this helps you.
John said it correctly about the 5 day eeg. When i had it i wasnt giving them any seizures until the last day.
I had neumerous since 2016 external and 1 internal eeg (for surgery) you will highly be placed as a high risk fall patient, and be helped to the bathroom every single time. Any meds you are on, you will probably be weaned off so seizures can be induced. You should get a button to push if you feel like you are going to have a seizure, or if you have someone come with you and they see you having a seizure, they can push it. Having the electrodes placed on your head dont feel the best sometimes, but you can deal with it if your doing it for the better :) i wasent allowed to walk around sadly. If you do have a seizure. They will give you a quick 2 or 3 minute test (atleast they did at my unit in MI) ask you to remember stuff, check your eyes, and i thing your feeling in each of your limbs. I think ask you what you felt leading up to your seizure and during your seizure (if you can remember) depending on youer seizure type, or how far along you are in testing they could order more tests like mri, ct scans, etc. And blood draws like every 4 hours (or so it seemed) your hospital might be different but thats what my hospital did lol
Another positive thing I have experienced during my inpatient EEGS, were being able to move around the Seizure Unit. Instead of just staying in my room, I could walk to the leisure room and it there were other patients I would visit , it there were games, We could play a few, eat lunch or dinner in leisure room or just watch tv. The staff wanted to keep us active and not be stuck in our room for 5+ days.