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Do You Have Problems Connecting To The Links That I Provide For The Up-to-date Information On Epilepsy?

Do You Have Problems Connecting To The Links That I Provide For The Up-to-date Information On Epilepsy?

I thought that I had mentioned in the past (but my memory recall is almost completely useless because of the severe brain damage to my memory, so I cannot be sure), that if you are in another nation besides the USA, and the links to the USA sites that I provide do not work for you, then let me know.

I know how to find the equivalent sites the the US Epilepsy Foundation in many other nations and likewise the government sites in all nations that provide one that is the equivalent of the US… read more

A MyEpilepsyTeam Member said:

Cenobamate is the generic version of Xcopri. My neurologist has me on this now too. You had better have good health insurance or be wealthy to get to use this (I am lucky to have good health insurance) because this is extremely expensive -- since the pharmaceutical industry owns the politicians and as a result there are no restrictions on how much they charge for medications.

This was the most recently approved --2019--anticonvulsant which is the long-shot for those of us who have not been able to achieve a long-term seizure free state with the medication alone. Theoretically, it was supposed to be the one that would help those of us where the other medications had not. However, a lot of things happen theoretically or even are logical that they should do what they fundamentals indicate that they should be able to do, but the difference between theoretical or logical and reality has been proven many times to be the same as fiction and non-fiction.

posted 2 months ago
A MyEpilepsyTeam Member said:

No, I haven't had any issues.

posted about 2 months ago
A MyEpilepsyTeam Member said:

This sounds very good, especially since 400 mg per day is not a very large dosage of Vimpat. Hopefully, it will continue working and even a slight increase in the dosage (if your neurologist believes it is necessary) will soon get you to the beginning of a long-term seizure free state. Just remember, like with just about everything else, there are few things that work that same for everyone and likewise few times when those diagnosed with the same condition share all of the same traits. Thus, it is looking so far as if you might be close to a chance to get your seizures under control. Keep positive and release any negative emotions and get enough sleep to help even more in getting to the seizure free state.

posted 2 months ago
A MyEpilepsyTeam Member said:

I'm also seeing my doctor Monday.

posted 2 months ago
A MyEpilepsyTeam Member said:

I haven't yet. But there is always a first for everything.

posted 2 months ago
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