Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Getting Family To Understand

Getting Family To Understand

How has everyone gotten Thier family to understand what we are going through. How scary it is. How we don't have the same abilities. I have times I can't concentrate like I use to. I get frustrated when I don't remember our things don't like they use to. I was able to go do much, but now it's gone. My wife and son just don't get it. They get upset thinking I'm lazy and things like that. I am pretty sure this is there denial and coping. I know there's more to say but let's start here. Thank you… read more

A MyEpilepsyTeam Member said:

It is hard to get some people to understand what we go through living with Epilepsy. Does your wife ever go with you to your Dr. Appts ? Meaning she goes to see your Dr. With you. If not , then have her go see your doctor. She can ask him/her questions to understanding your condition.

Maybe have your wife and son go on YouTube or Tic Toc and listen to the professionals and people with Epilepsy. The will talk about their knowledge and experiences.

posted 5 months ago
A MyEpilepsyTeam Member said:

Honestly, being that I was always the weird one, it took almost a year to get my family to understand. They either thought I wasnt having these monsters, or thought I was faking these monsters. Had to prove to them at a EEG.

posted 5 months ago
A MyEpilepsyTeam Member said:

the fact is... some family/friends just don't understand or don't wanna understand. some people think that you have a different diagnosis (partly because they think e (epilepsy) are only grand mal (tonic/clonic) seizures like the tv ads). they don't understand the behind the sences work of living with e. my own brother and sister don't fully understand the process. my dad is aware that i have e... but oblivous behond that. for example, when he said 'we miss you... we need to come down and visit!' (driving takes me 2-3 hours)... he did not realize i can't drive.
in short, when you tell um you got e... some will support you fully, some will kinda support you, and some will deny you.
this is the myths and lies about epilepsy video that contribute the family/friends thinking you don't have e.
https://www.youtube.com/watch?v=XocvsaJ9TUE&amp...

posted 5 months ago
A MyEpilepsyTeam Member said:

I haven't been able to get my family to understand since i was diagnosed at 18 months. And to this day they still refused to.

posted 5 months ago
A MyEpilepsyTeam Member said:

My family are pretty understanding...they still have their moments and will get frustrated with me ...i dont react...well i try not to..ill just go quiet..

posted 5 months ago
Already a Member? Log in