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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Photosensitive Epilepsy

Photosensitive Epilepsy

Does anyone here have Photosensitive epilepsy?
If so how were you tested and treated.

A MyEpilepsyTeam Member said:

I got diagnosed with occipital lobe epilepsy (i already had temporal lobe) last year. I think i am photosensitive now. Windows bother me because of the difference in light. Sun through the trees. Weird patterns like chainlink fences and things like that. People always assume photosensitive is just flashing strobe lights or something but its not just that😂 i wear glasses sometimes and they help slightly in stores and things like that but i dont think they help as much as they should. But they’re worth getting because it eases it a little for me. But it could help you more everyones different

posted 6 months ago
A MyEpilepsyTeam Member said:

Not diagnosed with that form of epilepsy but I can't handle high quality video or pictures anymore I even use a lower quality photo for my phone or I do screen shots my brain seems to strain when I am exposed to such high quality. And fireworks cause me to be disoriented now. I loved fireworks and even used to put on firework shows in the 80s. And actually my last fireworks before I had this sensitivity was in Costa Rica 2019/2020 for their New Year and its like the whole country is lit up. And I was fine. Mine started about 2 months after that last experience. But not sure if I had a seizure from exposure. I don't watch television or goto theatres. This is the best I can share.

edited, originally posted 6 months ago
A MyEpilepsyTeam Member said:

During my young years ( between age 7- 12 ) I had a mild version of photosensitivity. My cousin had a couple of computer games, and it never failed, during the time playing, I would go into a seizure.

posted 6 months ago
A MyEpilepsyTeam Member said:

Hi Nada so was diagnosed with photo sensitive epilepsy in November 2009 as free a motorbike accident I was in . Of course the results were from the doctors mouth. I never thought it was that much of a deal back then, so I never went on meds. Due to lack of educating myself and being unaware my epilepsy got worse. Then just before COVID hit I started getting really bad myclonic seizures. I then decided to go and get myself into meds. I am currently on carbamezapine, to help calm my triggers and my seizures. Thanks to lots of education on it, I am now aware of what could be possible triggers. Unfortunately for me my car licence and motorbike licence has been revoked. So, I am not allowed to drive anymore, which is a blessing and a hardship.

posted 6 months ago
A MyEpilepsyTeam Member said:

I had one tonic clonic seizure in a movie theatre with flashing lights but only that one time.

posted 6 months ago
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