I can't pinpoint when exactly, but I had a seizure and I'm not sure whether this was during the last stages of the grand mal or whether it was during my "aura" phase but I had an out of body experience where I had a cold sweat and remember shivering and shaking. During the experience, I remember hearing a drone-like sound playing in the background, I was in my late grandfather’s house with all my cousins in a room, but the room got emptier until it was just me and my father in the room except… read more
@A MyEpilepsyTeam Member, I understand stand about you feeling lonely with Epilepsy. When I was a teen I felt lonely too. I thought I was the only one with Epilepsy and I was spiraling down into depression. When my mom started to take me to a Epilepsy Support Group, I started to realize, that I wasn’t the only one. I learned a lot between my group and the staff, about Epilepsy. They also helped me out of my depression and helped me learn to cope .
Today I a totally different person. I have never got severally depressed since. I do have my days when I’m feeling down, but I shortly come out of it and become upbeat again.
@A MyEpilepsyTeam Member , I did a search on the internet and typed out of body experience and Epilepsy. I also saw a few videos on YouTube. The websites I found , some were replies from people and some were report and research on the subject
I dont mind sharing my experience at all. And yes it is like the weirdest thing to experience thats why epilepsy makes me feel so lonely and out of place /:
Hi @A MyEpilepsyTeam Member! Thank you for your response :)
Yes, I've also heard that people can have OBE's voluntarily and I've also heard that OBE's can be drug-induced as well but I find it very strange that I've had an experience unprovoked. Besides epilepsy and anxiety, I don't suffer from any other medical conditions so I'm pretty confused as to how the OBE came about.
Do you know where I can find information on people with Epilepsy who have had OBE's? Thanks again for the quick reply!
I have out of body experiences sometimes…. Definitely a very weird, scary, confusing, and traumatizing thing to experience. I would just keep trying to tell myself that none of this is real. I actually had a seizure yesterday and i physically couldn’t move or speak whatsoever and i heard a lot of weird noises as well, like echoes. Keep your head up 🙏🏼 we are all here for support