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Does Anyone Have The VNS?
A MyEpilepsyTeam Member asked a question 💭

I have two forms of epilepsy and I need the vns, it’s my one and only option.

posted September 15, 2021
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A MyEpilepsyTeam Member

about 2 mnths ago someone asked about the vns and got a lot of feed back. If you hit my picture or go to my profile page you could review it. Once in my profile page simply highlight my Q+A , highligt my answered, Then scroll down questions answered to find the one entitled Regarding VNS implants I have some questions. to see all responses on the topic simply highlight view all answers once there. Good luck! hope it helps

posted September 16, 2021
A MyEpilepsyTeam Member

I have the VNS put it's entirely different from all the others I have 2 VNS implants implanted I my brain one for the left hemisphere and one for the right hemisphere as my sezuires are coming from both sides of my brain from a TBI. Although the VNS has done p to help with my sezuires but shift them from peti and grand mal sezuires daily, weekly and monthly to every day and night noctornal sezuires. There is the RNS and other options did your doctor value mention these one my not work for someone and vice versa. I wish you well and pray that you and your family and doctors find what is best for you.

posted September 17, 2021
A MyEpilepsyTeam Member

Did your Dr. ever mention about DBS and RNS ? They are somewhat similar but still different.

Anyway. I have had the VNS . For me it didn’t work well for me. But, just because it didn’t work well for me , don’t mean that it won’t work for you. There are many out there w/ the VNS and it is working well for them

posted September 15, 2021
A MyEpilepsyTeam Member

I'm very sorry to hear that! But hopefully, if you end up having to do this you will be allowed a new look at life! Stay safe, and best wishes moving forward!

posted September 15, 2021
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