@A MyEpilepsyTeam Member - Hope you get your health insurance soon. If you don't think your neuro understands you, I highly recommend finding another. I see a neuro at an Epilepsy Center at a hospital (Columbia). I love her b/c she really knows her stuff can is up on the latest research.

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A MyEpile...

Excellent question!: I could be wrong, but if this Neuro is New to you, they will ask for your medical history instantly. Everytime I go in to see my Neuro he wants an Update on my current mental condition. How I feel, how am I doing, Has anything changed, Have my seizured changed, have I hit my head or fallen down, had a fever, gotten sick, or anything that may have “changed” since the last time I visited him. So basically, yes.
I don’t know if this helps. I have anxiety & depression because of the seizures/Topiramate. Hopefully others will have more answers.

@A MyEpilepsyTeam Member,
All I can say is, go online. www.epilepsy.com
But here I found this for your State.

Epilepsy Foundation Missouri & Kansas
2340 E Meyer Blvd Ste 300B Bldg 1
Kansas City Missouri 64132-2109
United States
Phone:
(Phone number can only be seen by the question and answer creators)
Toll Free:
(Phone number can only be seen by the question and answer creators)

They might, have another location, but this is the first one I had seen. They can at least give you some information and send you a free packet. All you have to do is ask.
The will have a list of Neurologists available to them that work with them in your State.
This is what I did to get the help I needed to see my second Neuro. I am so greatful for the Epilepsy Foundation. W/O them I could not get the med I have now nor could I see a Neurologist at all. That’s why I can’t complain about him to much. He actually is a Nice Neuro. Haas an awesome beside manner. I get frustrated because of the techincalities of not being close enough to see him has I need to and all the red tape of having to put up with the Town I live in. I live 2 hours away from where My Neurologist is located and my PCP here where I live is…. Well, lets just say, not cooperative.

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A MyEpile...

I have a lot of medical conditions on top of my epilepsy and I also have anxiety and depression and sometimes I'm not taken seriously and it can get very agitating when they find out and juge you because you have a metal disorder to I lift one of my seizure doctor because when I was in the hospital once getting help and I had a bad seizure they ended up putting me in ICU for a couple I don't remember anything only coming to and see this thing over my face then I was out again then the next time I came to I was in the room with my mom standing over me crying because they told her if I wasn't already there that day I wouldn't of made it. But yet when I went to my neurologist for my appointment. It was his partner that seen me in the hospital while I was in and he went back and told him what part of the hospital I was in and then told him it had to be in my head that I didn't really have seizures. And so that what my doctor told me it was all in my head and I didn't have seizures yeah I know what it's like not to be taken seriously 😑 stay safe

Have you thought about contacting rhe Epilepsy Foundation for help?