I’ve always had seizures in my sleep, its been that way for 12/13 years now. But suddenly, my seizures started happening first thing in the morning. I had two this week (which is a lot for myself. My medication was good on keeping me from having seizures) but both of them this week happened right as i was waking up. I do my weird choking fit and then the seizure happens. I guess my question is, is this normal or something i should be a little more worried about.
I used to have seizures only at night and now they are during the day, I always recommend to speak to your Doctor but I also get the chocking thing but after a seizure it is a ictal seizure which in my case its seizure activity at the end of my seizure. I know any change in seizures is scary I would make notes and tell your Dr all I know is the same thing happened to me and I am ok
@A MyEpilepsyTeam Member
Have you had any major stressors happen recently, I mean the really big ones?
Shortly after moving in 2014, I had a really bad night of seizures.
My seizures, all tonic-clonic, have been nocturnal. However, I do have quite a lot of spikes when first waking up (tracked by my NeuroPace). On the good days, I only wake up with headaches. On the bad days, I feel like I’ve had a seizure but the only thing showing in the log is lots of spikes.
I know you just recently started experiencing them, but have you noticed any changes in yourself since the last few seizures?...sleep, temperament, etc.
Make notes of even the smallest changes. I only started noting my changes as they began to get really bad. Looking back though, both myself and those around me are seeing that things began to change in me years ago. Some of those changes from meds but some possibly from seizures.
I would suggest talking to your epileptologist about it too. It’s better to be safe than sorry.
Good.But you should have video calls with your neurologist.The majority of doctors today due to Covid do video appointments.See if you can get a video appointment.All smart phones does video calls.That way you do not have to do that day trip.
That could very much be the case. Though as of right now, I can’t get in to see my neurologist due to covid. He’s a day trip away and usually only see him every 6 months. As of right now my family doctor put me back on my topamax along with my keppra, the dose is high but it will be cut back to what it was in about 2 weeks if no seizures happen. Though next time I talk to my neurologist I’ll ask about new medication. But he’s very much for surgery whenever I talk to him.
Your body has become immune to your anti seizure meds and now your brain is out of whack.It is time to make an appointment with your Neurologist or Epilepictologist for a complete checkup and medicine level check.You may need to find a new medicine or see if you are a candidate for a VNS or RNS IMPLANT.
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