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Non invasive VNS

March 12, 2021
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A MyEpilepsyTeam Member

I've heard of it and been wanting to read up on it just no time busy time and sezuire wise. Partial complex sezuires.

March 12, 2021
A MyEpilepsyTeam Member

I used one daily for a few months in 2019. I have seizures that cluster, as well as migraine with brainstem aura. It helped neither. I used it in intervals of a few minutes, about four times a day. I don’t remember what the company or product was called, but I had no luck with it

March 14, 2021
A MyEpilepsyTeam Member

I did some researching about the Noninvasive VNS. A device is placed in Fossa /Skin part of the ear. It’s used for all forms of severe headaches/migraines and Vertigo conditions. Not for Epilepsy. But those of us who do get headaches and migraines from the Epilepsy, it may work

March 13, 2021
A MyEpilepsyTeam Member

I had one put in a while back. Unfortunately, it did not help my seizures. I have partial complex seizures.

March 12, 2021
A MyEpilepsyTeam Member

Damn - you beat me too it 😁 I was going to ask whether anyone thought VNS would work for someone who has absences & partials in clusters .I usually just become ' spaced out ,,with the odd absence & some motor components My brain wouldn't be able to think ' oh I'll swipe it with a magnet ' When I was lone working they were thinking of giving me a type of ' panic buzzer ' to press but I declined it for the same reason - there's no way my ' spaced out ' brain would think to press it Thank goodness I'm retired

March 13, 2021

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