Hi, My understanding of someone who is a epileptologist is that, that doctor will only specialise in nothing but epilepsy. The doctor will not know everything there is to know about epilepsy.

@A MyEpilepsyTeam Member Our friends are right on the ball with their explanation of the difference between them. And here is the confirmation from the Epilepsy Foundation https://www.epilepsy.com/connect/forums/living-...

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A MyEpile...

Hi Christine. I was seeing a neurologist, but my seizures were too out of control, so he referred me to an epileptologist. I've been seeing mine for several years now. Epileptologists are higher trained then a neurologist, focused only on epilepsy. I hope that helps. "Epilep"tologist.

@A MyEpilepsyTeam Member and @A MyEpilepsyTeam Member explain it well. All I want to add is the fact I was seeing a neurologist for a couple years and I didn't like the lack of progress. I then saw an article in the newspaper about an epileptologist and I right away set up an appointment with him. He set me up for tests, discussed the results and told me what he planned to do based on the results. I stayed with him for 20 years until I was convinced I had control of my seizures after surgery.

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A MyEpile...

I went to a Neuro at first. They had no Epileptologists in Spokane, which is still the US. I was confused, had no idea what my condition was other than "it means you have had 2 or more seizures, and will probably have more without medicine." I had no idea about the meds, what side effects were okay and not, and was never told about Auras. My first med made me insane, and I had Auras so powerful they were almost no longer Auras. I also still had Complex Seizures, but didn't even know I was supposed to tell my Neuro. I moved across the state, and they referred me to Harborview which has an Epilepsy Clinic in the hospital full of Epileptologists as well as Neurologists. They work together. So not everyone in there has Epilepsy. Some may be TBI, and the Neuro has and Epileptologists to confer with for seizures from the condition. It's an amazing place. I know about my condition now, am involved in my own treatment, and it helped with stress being a trigger to feel better about who is my doctor.