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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Done The Vagus Nerve Stimulation (VNS)? Pros/cons?

Has Anyone Done The Vagus Nerve Stimulation (VNS)? Pros/cons?

A MyEpilepsyTeam Member said:

I was one of the first 1,500 in the world to get a VNS back in 1998. I just had my 5th battery replacement about two weeks ago.

posted about 1 year ago
A MyEpilepsyTeam Member said:

I have a vns implant im on my 5th or 4th vns since 2006

edited, originally posted about 1 year ago
A MyEpilepsyTeam Member said:

Thank you!

posted about 1 year ago
A MyEpilepsyTeam Member said:

VNS: It is your 10th Cranial Nerve (CN) simulator that sends a replacement neurotransmission upon a medical anomaly of the sensory neuron (e.g., Afferent Neuron) of the electrical signals being absent. Essentially, from a positive standpoint, upon insufficient nerve impulses of your affected cranial lobe(s), the VNS replaces the missing portions of neurotransmitters to deter the reoccurrence of chronic/reoccurring auras, partial complex/focal and generalized tonic clonic seizures.

From a negative standpoint, a prime factor of the sensitivity is that main component of laying you head on the affected side or lobe on a sleeping pillow and it does in fact interrupt you sleeping capabilities, if the pre-existing meds do not already result in insomnia. Therefore, if you already have difficulty sleeping as a secondary diagnosis or medical condition then I would tread carefully. If any surgical operation is available ensure you look at those options and even if one practitioner claims surgery is not an option, don’t trust them and obtain a second opinion due to some practitioners only having management goals and training in mind, not preventive measures and corrective treatment!

Good luck

posted about 1 year ago
A MyEpilepsyTeam Member said:

Love my VNS. Best thing I ever did.

posted about 1 year ago
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