Music and my journal. When I can’t handle my emotions I simply check out for a bit. I put in my airpods and tune into a playlist on my phone. I also tend to write in my journal.
Sometimes the writing helps untie my feelings and I’m able to sort myself out a lot easier than talking to someone. It also helps that I’m not expected to answer questions. Sometimes I just need to vent and writing allows me the safe space to do that without judgement or ridicule.
@A MyEpilepsyTeam Member
We HAVE to get together and speak up in front of the general assemblies of our states as well as in Washington D.C.. I'm willing to go speak on TV and in front of the U.S. Congress. I think that we NEED more health care coverage. Just three years ago, I was paying over $2,000 every month for just one of my medications. That is ridiculous!!! I take three AED's every day. Thankfully, my insurance guy got me a special card that diverts 99% of the cost of the meds.
I had never been know to be sick or have health problems growing up. However,
now having to deal with a form of Epilepsy that damn near kills me every episode I have. Having to be at forcibly placed into a medically induced coma so my seizures stop and I may hopefully live, it really changed my view on life, I want others happy at any cost.
Either being the butt end of a “dark humor” joke or making fun of myself it keeps me positive and tought me if you cant learn to smile, or laugh at yourself it makes everyday easier.
My ways of dealing with my epilepsy;
-Letting Material items NOT control your life
- The on going hope things will get better.
However for any of my fellow gentlemen I will let you know now. One good thing keeping my mind on track, and not allowing me to seize.
Is knowing I have already had to endure nine catheters and I believe that is already 9 too many.
I may be young but it doesnt mean my life is over.
If you belong to an Epilepsy Support Group of some type ask people who their doctors are and what they think of them. Think of some very specific questions you would ask people about their doctors in your area. I realize the good neurologists may not be close to you. I travel more than an hour and half one way to see mine, but I wanted the best and was and am willing to pay for the best. Sometimes getting on waiting list for the best is what you will have to do. Mine has a six month waiting list at the moment.
I don't let my having Epilepsy "get me down"~ Guess it's because I have had it since I was age six & grew up dealing with it.
EPILEPSY "just didn't happen suddenly"~ I've dealt with it for a very long time.
AND I just got used to it~ I don't even think of it.
THE only thing I worry about is "NOT having another Seizure"
AS long as I take my medication, I'm just fine.
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