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I've Been Having This Funny Feeling Going On In My Head All Day For Weeks Now Like Am Just Off Kneel And Not There.

I've Been Having This Funny Feeling Going On In My Head All Day For Weeks Now Like Am Just Off Kneel And Not There.

Like you're going to have a sezuire but nothing ever happens. Your taking you're meds on time and eating and staying hydrated and everything but still feel off in the head. Like you lost your equilibrium and you know something is off but you don't know what.

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member. I haven't really asked my nero bout the spike log around my nocturnal or my silent one that are associated with the confusion and irritability and so on because as we see in the neropace log all the sezuires wether they be nocturnal or silent are only 20 to 40 seconds long. I was going to see about it as someone here said something about maybe I could be having peti sezuires in clusters during this time due to all my stress levels and everything so it's something to look into. Been feeling O.K. I have my good days and bad days.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

Think of it this way- a seizure is starting but can't /won't happen due to your meds stopping it.-thankfully. Rather have this or a big seizure? Of course you can talk to Dr bout adjusting them but they are helping so much.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

I feel like this quite often. It's scary, unnerving, upsetting and confusing. When I feel like this, I feel even almost unfamiliar with myself, my own delights, pleasures and people and things around me. Epilepsy is something modern medicine and science are still relatively clueless about. This is a disease that robs many of us of much of our life.

posted almost 2 years ago
A MyEpilepsyTeam Member said:

David I know these episodes maybe bothering u but, u have to realize u are actually having petty Mal epileptic serizures...they take u off to space...this is how I failes elementary school...the doctors FINALLY clocked me in of 100 - 150 seizures of all types & as equal to all petty Mal were my least favorite...I'd be answering questions in class in elementary school & all of a sudden I'd be having. Petty Mal epileptic serizure...I had no idea what was going on??? But through the entire day of going to school being at school & finally being at home for dinner & going to bed id have them all day!!! I hid them very well & no one knew not even my mother...Id be having a seizure &: mother would be calling me for dinner when I'd have. Seizure I'd be a couple mins late she'd be mad & come in & yell...DINNER TIME!!! It would pass but the doctor's lost count at 150 seizures a day...so when I was in hospital the specialist & I had a discussion...I told her my secret...I had anxiety attacks she was leaving for the weekend & she glued the cords really hard to my head & she said if any of these anxiety attacks came push the button ..I had been y the hospital for 10 days & hadn't had a seizure yet when the doctor says uve got 5 days left & uve got to show me ur having seizures...the doc said I wasn't allowed to fall asleep till 4am that night at 3:50 am I finally asked if I could go to sleep when for the 1st time in 11 days I had My 1st grand Mal on tape!!! I had so many after that they couldn't keep counting...they literally lost count at 150...I kept on having visible siezirures...they didn't stop!!! When the lady who was taking care of my count & proof that they were epileptic siezures she came in after being there 10 mins & walked in & said u recall when we spoke before I left those anxiety attacks are actually epileptic serizure ..I cried because having being told I was stupid & a loser cause I couldn't understand elementary & high school & the teachers all calling me stupid & I would never amount to anything...well after I had my surgery the siezures were gone for 2 - 3 years...when I was in something horrible I hit my head a certain way when all if a sudden I had a grand mal epileptic serizure...I was the 30% that it would come back about @ the 2 year mark I started having my silent seizure again & some non epileptic serizues...it's possible u know so when ur having what seems like a panic attack u actually may be having a SEIZURE!!! So good luck in yr findings as pettymals hurt just as much as a grand Mal just in. Different way...all my best & thanks for being in my room!!! Pemeten...all my best in ur findings...take care!!! Pem...

posted almost 2 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member. I'd ask your doctor or nero about this if you haven't already. I was on keppra along time ago but only 500mg a day of I remember correctly head was out of wack and nauseated, my depression was at it's worest when I was on it and low appetite

posted almost 2 years ago
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