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Epileptic Spikes
A MyEpilepsyTeam Member asked a question 💭

My daughter was diagnosed with epilepsy in May 2019, her first seizure was in October 2017. She has focal epilepsy that results in hand twitches. She has had two grand mal seizures. A few questions....since her first seizure she has had a constant low grade headache. She says it feels like her brain is too big for her head. Does anyone else feel this? She is also constantly fatigued. No matter how much sleep she gets she is still tired. What can help this? On her last EEG in October… read more

posted January 3, 2020
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A MyEpilepsyTeam Member

I have everything you have described.Hand twitching and constant headache and Gran Mal seizures.And I am constantly fatigued.So I can relate to as a father and sufferer of Epilepsy it is very hard to cope.And our self esteem drops.But as a father you must encourage her to stay positive.I suggest you get a book by Norman Vincent Peale called The Power of Positive Thinking.And is your daughter a minor.If she is you can teach her how to stay positive.Staying positive helps you cope with Epilepsy.Every time I start talking negative my wife steps in to say honey change your focus to your grandson.And it works.

posted January 3, 2020
A MyEpilepsyTeam Member

Never trust anything on Wikipedia.It has been proven wrong and full of misinformation.I as an adult has been diagnosed with almost every seizure out there.My seizures are combat related and I have a traumatic brain injury that I sustained when I had my widow maker heart attack on 7/1/16.I was actually clinically dead for 35 minutes and 35 seconds without oxygen.I was at a restaurant when it occurred.And when I went down I hit my head on the hard tiled concrete floor.On Monday I will be scheduling my MRI of my brain to check to for 2 things.One is to see if my non cancerous brain tumor called a Schwannoma Cell is back , and two to see how much brain damage has really happened to my brain from being dead.I have 2 stents in my left ventricular heart chamber.And ever since my heart attack my seizures has come back with a vengeance.I have had seizures off and on since 1997 the year I got out of the Marine Corps.I will keep you all updated..

posted January 3, 2020 (edited)
A MyEpilepsyTeam Member

Try getting the info on the seizures from the experts themselves on Epilepsy.The Epilepsy Foundation itself

posted January 4, 2020
A MyEpilepsyTeam Member

If she is on medication this is probably the cause her fatigue. My daughter will have an afternoon and early evening nap of around a half hour each time. I find I’ll need an afternoon nap. I think this is pretty common. Sometimes I will also get a headache a while before I have a seizure. I find a shower with water running on my head often gives me some relief but not always. I find that mentioning these type of things to my neurologist can be a help to understand what is going on. Good luck and hoping your daughter improves.

posted January 3, 2020
A MyEpilepsyTeam Member

Everything you explained , many of us experience those symptoms too. During the EEG , we all have the possibility of showing spikes in the seizure waves while on the meds. . The brain wave spike , was probably and Absence seizure. Those are harder to detect. If your looks like she’s daydreaming or it looks like she has a blank stare , then she is having a Absence seizure.

There are a couple of possibilities of her feeling tire, after the right amount of sleep.

1. She is seizuring through the night during her sleep. Even if she seizures during the day can possibly make her feel fatigued.
2. She could be experiencing side effects from her meds.

Maybe check to see if the Epilepsy Foundation is near your area , maybe get her into a support group. She could learn a lot of stuff from both her group and the staff. When I was in my teens , I too went to a support group through the Epilepsy Foundation. They taught me a lot . It even helped me cope better with my Epilepsy.

Living with Epilepsy is a challenging lifestyle . She will need family support and hopefully support from her friends to. Many people who are newly diagnosed with Epilepsy, especially at a later age ,struggle and can lead into depression, and anxieties.

Everything she was able to do before being diagnosed, she probably won’t be able to do those thing the same way . She would have to find alternative ways to do everything.

For example. If she drove , she is going to find friend and family who can take her to her destination. If your in a big city , she would need to look into city transportations, like the bus , taxi , Ubur and ect. If in a small town , look into a county transportation program. Even walking and biking .

It may take awhile for her understanding triggers that may make her seizure.

Hope this helps you some. Wish your Daughter a seizure free day

posted January 3, 2020

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