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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Ziess Lenses
A MyEpilepsyTeam Member asked a question 💭

Would you wear the dark blue glasses that are meant to stop photoepilepsy?
Aim gonna ask my optometrist about them when I have an eye exam refitting.

posted August 30, 2019
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A MyEpilepsyTeam Member

Haven't heard about that. So the lenses are dark? What would it be like walking around the house with dark glasses (if that's how They are)?

posted August 30, 2019
A MyEpilepsyTeam Member

Yes sure. Make sure they arent just new lenses in glasses already. If so I already have them but they dont work to that regard. Especially when Im around strobes including police and emt trucks

posted August 30, 2019
A MyEpilepsyTeam Member

They are the best light reacter lens they make the best camera lens in the world

posted August 30, 2019
A MyEpilepsyTeam Member

I would. I already have photo sensitive epilepsy and wear special lens to prevent seizures and migraines. It should've a more broadly shared commu icated issue of concern

posted August 30, 2019
A MyEpilepsyTeam Member

Strobe Lights
As much as possible, avoid being in places where strobe lights are used, such as certain bars or clubs. If a strobe light suddenly appears, cover one eye and turn away from the source of flashing lights and try to leave the area.
School dances may also have strobes; however most schools will avoid strobe lights if there is a student with photosensitive epilepsy who wishes to attend the dance. It is important to convey this need to the school.
Visual Fire Alarm Strobe Lights
Under the Americans with Disabilities Act (ADA), most workplaces and places serving the public, including theaters, restaurants, and recreation areas, are required to have fire alarms that flash as well as ring so people who cannot hear or cannot hear well will know there is an emergency.
To reduce the likelihood of the strobe light triggering a seizure, the Epilepsy Foundation’s Professional Advisory Board recommends

posted January 11, 2020

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