What Kind Of Medicine Should I Choose? | MyEpilepsyTeam

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What Kind Of Medicine Should I Choose?
A MyEpilepsyTeam Member asked a question 💭

Ok, maybe you guys can help me! My doctor gave me four types of medication to research for my partial (non-convulsive) seizures: tegretol, aptiom, lamictal, and vimpat. I have read about them but the side effects, etc. generally seem to be the same. Does anyone have any recommendations for one versus the others? Thanks so much for any insight you can provide!

posted March 14, 2019 (edited)
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A MyEpilepsyTeam Member

Tegretol: I’ve been on a few types of Tegretol brands all my life. They all didn’t give me bad side effects. The only side effects I got was the drowsy and sleepy side affects.

Lamictal : I use to be on that for about 7 years. It didn’t have much trouble with until my last year. I started to develope Kidney Stones , witch is a side effect after being on it for a long period of time.

Vimpat : that was a nightmare . I wasn’t quite on the full starting dosage. I was still weaning off the the other medication. Every week when my Vimpat would increase while the other med was decreasing, I noticed it was getting harder to balance. 2 weeks before , I would be off the one med and fully on Vimpat , I was bed rested . I was watching tv with my family . I got up to do something. I took two steps and then find myself on the floor. I tried to get back up but couldn’t. I crawled all the way to my bedroom and lied down. I could even look at the ceiling, because it would feel like the room was spinning. My wife call a nurses hotline for advice . And they told her to put my back on my original doses before the Vimpat.

posted March 14, 2019
A MyEpilepsyTeam Member

I have personally taken lamictal ever since i was diagnosed at age 2 and it was the only medicine I've taken/been prescribed that worked and that i didnt overdose unwillingly on. Vimpat I got prescribed with Lamictal to enhance the benefits of it but it just made me seize up, throw up, sleepy, get migraines, hallucinate, tremble, twitch, etc. so I refused to take either for 7 almost 8 years until i got pregnant with my daughter in 2018.

posted April 12, 2019
A MyEpilepsyTeam Member

Tegretol did not work for me. I had more. On vimpat now. Usually works well. I have not tried the two in the middle. Sorry.

posted March 15, 2019
A MyEpilepsyTeam Member

Hi I have taken tegretol and lamotrigine at the same time that worked but stopped working after a few years so my neurologist has put me on epilim and lamotrigine

posted March 14, 2019
A MyEpilepsyTeam Member

this is the bad news, everyone is different so the meds will be different. tegretol did nothing. drs suggested ether lamictal or one other med and i wint with the other med (keppra). i didnt take aptiom and vimpat because the keppra worked.
but like i said everyone is different. i have genetic seizures. most have an infection or virus that triggers a seizure. maybe you had a fender bender (car crash) that triggered a seizure. some dont know why they are having a seizure.

posted March 14, 2019 (edited)

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