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I am 30 years old, with Catamenial Epilepsy. Every cycle, about 3-9 days before my period is to begin, I will fall into a cluster of grand-mal (tonic-clonic) seizures; by "cluster", I mean I will have two to eight convulsive episodes within a 24-48 hour period. This has been happening now for about 13 years (of the 23 years I have had seizures in general; beginning with petit-mal episodes as a child) and even though my seizures are expected based on my cycle, I am still not able to have my… read more
My husband and i have been talking about me getting a hysterectomy in a few years. We both agree on adoption (he was adopted as a child) if we choose to have another later in our lives.
I have mentioned this before I would try taking away your period with some medication. The depro vera shot has been a life saver for me. Seizure activity is oftern based on hormones. I have not had a period in 14 years. One shot every 3 months.
I have a vns device and it has helped redu e recovery time and severity but im still having my monthly period seizures
I have never heard of Catamenial epilepsy. Sounds terrible. I have considered other options besides medication. Brain Surgery was one, but any surgery is risky. I have heard about VNS devices and am not sure about that. It affectes everyone differently. Good luck and take care.
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