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How Would You Deal With People Who Constantly Don't Think You Take You Medication?

How Would You Deal With People Who Constantly Don't Think You Take You Medication?

I'm refractory/intractable was diagnosed with seizures when I was 2 yrs old
I've never been controlled and never know when I might I might have a seizure.doctors freak out when I seize I have focal seizures now and I can hear and see everything going on. I'm but anything said would be part of the seizure.

I'm allergic 5 epilepsy medications along with iodine and I can't have MRI because of my pacemaker.
I'm also photo sensitive

Has anyone ever been ask over and over if they took there… read more

A MyEpilepsyTeam Member said:

Randy, I have been siezure free for 2 days YEA. I came to visit my daughter in Ga and it is so calm here that I haven't had a siezure.

posted over 3 years ago
A MyEpilepsyTeam Member said:

I think the less stress. I have something else to worry about. My daughter is having a bad pregnancy. After 5 girls, she is having a boy. My first grandson. Things are going good now. They will probably take him on Nov. 15. I really think that I have PNES. Not epilepsy.

posted over 3 years ago
A MyEpilepsyTeam Member said:

i enore them

posted over 3 years ago
A MyEpilepsyTeam Member said:

It great to hear that . Do you think the reasoning for your seizure free days, is because your less stress or is it the change in the climate or the environment ? Hope your stay at your daughters continues with no seizures.

Take care

posted over 3 years ago
A MyEpilepsyTeam Member said:

Other than being alergic to Meds and have photosensitivity , I’m the the same with the rest you mentioned. I too have Focal seizures and I have no clue when I have them, unless a friend or family member Witness my seizure.

My seizures aren’t 100% controlled. My seizures are can be unpredictable at times.

I have a 7 day weekly pill boxes. If anyone wants to know if I’m taking my meds they can look at them to see if I took them. I would also tell them , but if I’m not in the mood, I would tell them to look at my pill boxes. Now if they aren’t at my home , still have no trouble answering.. if they keep getting on my case everyday I’m going to either ignore them or start lecturing them, that the meds don’t always control everyone 100%.

posted over 3 years ago
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