I Will Be Going To Cleveland For A Video EEG Lasting 3-5 Days To Determine If I Qualify For A Lobectomy. Has Anyone Had This Surgery? | MyEpilepsyTeam

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I Will Be Going To Cleveland For A Video EEG Lasting 3-5 Days To Determine If I Qualify For A Lobectomy. Has Anyone Had This Surgery?
A MyEpilepsyTeam Member asked a question 💭

I'm also scared of the possible tests that may be done while I'm there.

posted August 1, 2018
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A MyEpilepsyTeam Member

Yes I did in 1988. A right temporal lobectomy. Left me with some left sided weakness but well worth it.

posted August 2, 2018
A MyEpilepsyTeam Member

I've been for that same screen but I didn't qualify. One of my friends had a lobectomy and it was pretty hectic. Think long term!

posted August 2, 2018
A MyEpilepsyTeam Member

Im so sorry you have endured this procedures. I wont do that. I really havent seen a shre where this has wrked. For anyone. So sorry.

posted August 6, 2018
A MyEpilepsyTeam Member

I was offered that test after my left temporal lobe surgery & it was way past when my surgery. I was seizure free for 5 years exactly & then got grand mal seizures from tremors before the surgery. I could have went for the test to just see if anything was going on & my little seizures now are not the same. I can't talk, tongue problems, & now seems like anxiety problems. The test I got a talk to about it & also letter about everything that happens for a 5 day test from Monday morning to Friday lunch time. You have the EEG are attached to your head & need to wait till Friday to wash your hair. Have you had other tests done? I was also offered to go to Montreal for piles of tests to see if they can do another surgery but I won't do it.

posted August 2, 2018
A MyEpilepsyTeam Member

What other tests were done, if you dont mind me asking

posted August 2, 2018

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