Have any of you found triggers for your episodes? I keep a log of whenever I have them, the severity, if I’m taking my meds regularly etc. I thought I was getting them when I was more on the stressed side, but I’ve been having them pretty frequently for the past week and haven’t been too stressed. They are so random. I won’t have any episodes for months at a time and then they just pop up out of no where. And it’s honestly the most terrible feeling, it’s almost indescribable. It’s… read more
You describe the feeling very well. I was diagnosed in december & I have focal seizures. I have been keeping a log & a calendar to try to find any patterns or triggers but I haven’t been successful yet. I know stress can be a trigger but for my 6 seizures I had this week I wasn’t stressed at all for them & for 2 of them I was having fun with my friends. I hate the feeling afterward & it just feels like your off & it takes awhile to feel like yourself again. I also feel like they come in waves. The longest I’ve gone is 13 days back in January & my longest since then was 9 days & then I had 1 seizure for 5 days in a row & 2 on one of those days. I’ll usually go almost a week & then have 1 seizure for 3-4 days in a row. It’s so hard to predict when I might have 1 but then I try my hardest not to worry about it & make myself more stressed. It’s like the hardest mystery puzzle to solve ever!!
Menstruation and PMS. Hormonal changes have always been my downfall.
Hmmacines: I also have temporal lobe seizures (complex-partial), and I've figured out that my aura is a sudden chill that runs through me where I'll get goose-bumps. I'm trying to learn of a way to go into some sort of concentration on it and only it. I stop anything else that I'm doing ASAP, but I don't know if this is really the cause for so many times when a seizure doesn't follow or not. I also get the deja-vu of years ago, which all seem to be as clear as can be! One freaky thing happened a year ago: After a seizure occurred I looked at this friend and said: "I knew you in the 1980's from 1st street! You did this and I did that, etc...". It was weird, because then she started to recognize me too. I remembered where she worked and a few other things. That era was as clear as could be! Jeff PS-As a safety step, turn down your water heater to a temp. so that your skin will not be burnt when using the HOT by itself. I ended up with 3rd degree burns over 33% of my body in the shower when I had a seizure, and was in a coma for 2 months. Jeff Curtis
I have temporal lobe and I felt EVERYTHING you're feeling before my surgery last year November. Although my seizures were 3 or more times a fortnight. Are you taking any of these medicines I'm taking? Keppra, Lamictal and Tegretol. It might be a side effect as well but for me most of the time, seizure is coming.