Nice meeting you too. I have had my epilepsy all my life and will still have it in my further life. I am well coped with my disorder and Epilepsy is just lifestyle and a fact of life. No matter how my day goes good/bad , I still keep a positive look out. I wont let my Epilepsy take me down. The 1 golden Rule I follow by and has always helped me, was that I control my life not Epilepsy.

I had uncontrolled right temporal lobe epilepsy. I took all those pills alone and in combinations to no avail. Topamax is the worst!! Dope-a-max i was unable to think on that junk.. No drug or combination was found to improve my situation. I ended up improving the seizure issue with surgery. However I traded mood control and short term memory for less seizures. If I could go back in time Id never let them operate. In my case 5-10 seizures per day offered a higher quality of life than my current 'shortterm memory and mood issues with occassional seizure'

Glad to meet you Randy. Oh wow.. well doubt I will be in the 5 percent... having had E over fifty years. Only 100 percent relief I get is with CBD oil. But only for several hours. I truly wish I had a cbd neurologist. Perhaps someday.

Hi @A MyEpilepsyTeam Member . I’m in the same boat my seizures are in the Left Temporal Lobe too. I also have been on many AED Meds. Non have controlled my seizures 100%. I have gone through brain surgery ( reduced my seizure frequency ) and VNS implant , and they still aren’t 100% controlled.

I learned at a Epilepsy Foundation Conference that the bunch of us who have been on many meds and med combos have 5% chance find the right med or meds the control our seizures.

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A MyEpile...

I’m a little late for this question but I’m on Briviact which is a newer version of keppra, it just came out in 2016 & my neurologist only has a few people on it. I started it last month & my dose was just increased. So far it hasnt really helped but I also just started hormones so a lot of things are changing at the moment. I’m really glad I have no copay for this because a 1 month supply is $2,200.