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Left Temporal Lobe Epilepsy

Left Temporal Lobe Epilepsy

I’ve been on Topamax Keppra Klonopin dilantin tegretol Depakote Lamictal Lyrica Phenobarbitol Neurotin Ativan...10 year time... neuroogists have put me on all these meds at differant times... I only took one medication at a time as prescribed by neurologist... none work... I got ill and seizures never 100 percent controlled. Is there any medication not meantioned here that is for left temporal lobe epilepsy? I have an appointment with neurologist.

A MyEpilepsyTeam Member said:

Nice meeting you too. I have had my epilepsy all my life and will still have it in my further life. I am well coped with my disorder and Epilepsy is just lifestyle and a fact of life. No matter how my day goes good/bad , I still keep a positive look out. I wont let my Epilepsy take me down. The 1 golden Rule I follow by and has always helped me, was that I control my life not Epilepsy.

posted about 4 years ago
A MyEpilepsyTeam Member said:

I had uncontrolled right temporal lobe epilepsy. I took all those pills alone and in combinations to no avail. Topamax is the worst!! Dope-a-max i was unable to think on that junk.. No drug or combination was found to improve my situation. I ended up improving the seizure issue with surgery. However I traded mood control and short term memory for less seizures. If I could go back in time Id never let them operate. In my case 5-10 seizures per day offered a higher quality of life than my current 'shortterm memory and mood issues with occassional seizure'

posted about 4 years ago
A MyEpilepsyTeam Member said:

Glad to meet you Randy. Oh wow.. well doubt I will be in the 5 percent... having had E over fifty years. Only 100 percent relief I get is with CBD oil. But only for several hours. I truly wish I had a cbd neurologist. Perhaps someday.

posted about 4 years ago
A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member . I’m in the same boat my seizures are in the Left Temporal Lobe too. I also have been on many AED Meds. Non have controlled my seizures 100%. I have gone through brain surgery ( reduced my seizure frequency ) and VNS implant , and they still aren’t 100% controlled.

I learned at a Epilepsy Foundation Conference that the bunch of us who have been on many meds and med combos have 5% chance find the right med or meds the control our seizures.

posted about 4 years ago
A MyEpilepsyTeam Member said:

I’m a little late for this question but I’m on Briviact which is a newer version of keppra, it just came out in 2016 & my neurologist only has a few people on it. I started it last month & my dose was just increased. So far it hasnt really helped but I also just started hormones so a lot of things are changing at the moment. I’m really glad I have no copay for this because a 1 month supply is $2,200.

posted about 4 years ago
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