This is my first time posting on a site about my epilepsy, but I feel like I just need to vent to people like me. A little about me: I live in a small town in VA with my mom, dad, and fiancé. I'm turning 25 in a week and I had my first seizure at 17 the morning after my grad party. It was a gran mal and my life just hasn't been the same since. I currently take 350mg Lamictal XR at night before I go to sleep. Some nights I wake up and have bad tremors still. Growing up I was always the funny… read more
Ok. I've had siezures for a long time. Depression is med caused in most cases. Too much or a change of amounts. Carole is right you MUST talk to others about your siezures. Friends , classmates professionals they all work. That's what got me through it in the beginning. I educate others about siezures that allows me to talk about it a lot. I'm 54 have adjusted and live with my epilepsy. I own it it does not own me. I am in control of it at all times. And so can you. No more pity parties. Take control of your life and don't rely on others to help you too much. You are your own best friend. Get rid of the stress and all those that may cause it in your life. You have to live to be siezure free that is the most important thing in your life right now. You know the rest. Eat very healthy. Get plenty of rest and exercise and watch your meds. Your life must be a perfect balance. My doctor that trained me is Dr Donna Andrews. She's a neurologist and a psychologist. And she has epilepsy.
Google her if you like read about her work.
You can do this it's a lot of work but well worth it once you feel your finally in control
I have experienced deeper depression these past couple years especially- although I have suffered from Grand Mal seizures since I was around 10 or 11. Now, being in my thirties and living in a smaller city I notice it more where my mobility issues have become more of a problem because I cannot drive on my medication. It has made securing work extremely difficult. Getting no medical coverage as a Supply Teacher because we are not considered permanent staff. The unpredictability of when I am called in to work and the time it takes for me to get there and often feeling confined to my house it has been extremely taxing on both my brother and me who live in the same house.. I got involved in some theatre this year which helped but more often than not I have to rely on other people's help getting places . As I grow older and my seizures seem to be occuring more with my heightened stress level I have turned to marijuana to help but that has also led me down a rather unhealthy path. I went to Epilepsy Southwestern asking if there were any aids available to help people suffering from seizures like maybe some funds for medication or travelling costs to get to and from work and they were of NO help- I was quite surprised and disappointed.
I understand what youre going thru. I was 18 when i had my first seizure at a new years party and im 27 now and i havent been the same since. My memories are shot and after every seizure i have my mental state is jacked up for a couple days (which people around me dont understand) just hanging there and im always here if anyone needs someone to talk to or to vent to. I know how it feels
The way I calm down
is either watch a good film or take a nap or find something that will interest me.
Mediation doesn't work~Can't stand "Total silence
When we had a blackout in NYC in
2010 I almost went nuts from the dark
and the silence!!!
I have a lot of friends. I do a lot of things I should not do, climb mountains, caving, climb cliffs, rode motorcycles for 50 years, raced motorcycles. I get 'high' from doing crazy stuff. I rode horses. Never had a seizure doing these things. I had seizures in church, work, at home, lazy times, at the hospital. It seems when I am very busy, playing baseball, bowling, I am seizure free.
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