Neuro back in the chicago area took me off my meds. I have left lobe epilepsy all my life. Been on meds 30 years. Dilantin, phenob, topamax, tegrtol, keppra, [[treatment:lamictal,:5508b7fb6bcd61548000025f]],. So it was nice one year no meds. I ignored few absenses i had but now that I moved to california im expericing 2-4 dejavuu sezures and they are much stronger out here. I can at times even smell things while remembering things. All dejavuu and smells are pleasant. Is why I didnt rush to a… read more
I take Fycompa(perampanel), Vimpat(lacosamide), and Frisium(Clobazam). The last one has been around for awhile, the Fycompa’s pretty new only one pill a day.
I take keppra, vimpat, and now Aptiom for right temporal lobe epilepsy. I mainly have complex partial seizures that are now pretty much controlled on the 3 meds. I have a few partials here and there, but no big deal. Aptiom is a pretty new med. It's expensive b/c there's no generic yet. But, there is a discount card online if you look it up. Search Aptiom discount card. There is one for Vimpat too. It brought my copay down from 60 a month to 10 a month for aptiom. It is a once a day drug and I like it. It does cause dizziness and unsteadiness and a little nausea, but now I'm fine. It works well with others, but all are different. Good luck. PS- A neurologist pulled me off Tegretol at 18 b/c he thought I grew out of my seizures and I made it almost a year and had a grand mal and ended up in the hospital and back on it. Be careful and good luck!!
You know something, for 33 years I did not have 1 seizure, and then I moved. I moved from Va. to N.C. and then, I started having seizures almost daily! I asked my Neurologist why that was and she said that it was the stress of moving down here, and 'uprooting' myself where I was settled for so long with family, church, work, family and more.
Carl.... that makes sense what your neuro said. Im going to make notes for my neuro. Terribree thank you about medication information. I must do notes!
Thank you for information. And glad you are doing well. Yes that is why I want to go back to a neuro...these things are getting worse and I gotta get them under control again. Soo helpful and supportive thanks!!!!!