I would just tell them that the Epilepsy Foundation does not say epileptic anymore. They only use "a person with epilepsy".

Yes I think labels in general are not always useful because I think sometimes ppl will tend to over identify. Like yes I have epilepsy, but that’s not all my life is and that is why personally I will never identify as an epileptic (I will still say have epilepsy) because I’m much more than my epilepsy. Along with this I know that no matter how bad my epilepsy gets I can still have so much going for my life that I don’t necessarily have to grab on to the epilepsy label to define me as many of us are we are complex and epileptic doesn’t capture our whole state of being. I completely understand that there are different views and perspectives- I am learning from all of you and it’s so important to draw into each one in the presentation I’m doing. So please don’t think just because I have one viewpoint that I don’t respect or value yours, because your opinions on this matter are very important to me and I love all the different responses. I love that we all can reflect in a positive, respectful way 😊☺️

I would take it either way, it doesn't bother me that I have it or that others know that of me. I'm not embarrassed about people learning that of me.

Hi Becky I don't like being called a epileptic this makes me feel negative and abused but I don't mind them saying I suffer with epilepsy

And perhaps the age of the person...epileptic had negative connotations when I was growing up, lots of stereotypes attached to the term. That was back in the '70s and '80s though.