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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Baton Rouge, LA

Like don't remember things you should be able to remember

August 5, 2017
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Answer Summary

Many community members shared their experiences with memory loss related to epilepsy, describing challenges like forgetting daily tasks,... Read more

Many community members shared their experiences with memory loss related to epilepsy, describing challenges like forgetting daily tasks, conversations, and even what their own homes look like. Several members described helpful coping strategies, including taking photos of their home for reference, writing notes, and leaving sticky notes as reminders, while others noted that memory problems seemed to worsen with age and after each seizure. A recurring theme was the emotional weight of memory loss, including feeling embarrassed or misunderstood, along with a strong sense of mutual support and encouragement among members.

A MyEpilepsyTeam Member

Yes, and that's a side effect of having seizures and also the medication.

May 2, 2021
A MyEpilepsyTeam Member

My memory is horrible. Sometimes I get asked simple questions about my family, ages etc., I can't even remember what order my kids were born in!! Even long turn memory is horrible, I try to stay away from being engulfed in deep conversation(I feel stupid)

August 8, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member im struggling with college also ...its very difficult at times

August 16, 2017
A MyEpilepsyTeam Member

My memory loss is getting worse. I'm 57 and have suffered many seizures over the last 25+ years. They appeared when I was 29 and diagnosed as grand mal caused by a head injury as a child. They turned nocturnal a little over 2 years ago. Much more violent. I have to write notes on taking meds. I leave sticky notes everywhere to remind me to do things. I couldn't work because of this.

August 7, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member not if they wing me off and plus I've been seizure free for 3 years so if i keep it up i can get winged off of it i hope

March 2, 2019

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