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A MyEpilepsyTeam Member asked a question 💭

I'm 18 years old and have had Absent seizures since I was 2. The many different medicines I have taken have not worked for me. More bad than good. all the side affects. My Dr. is suggesting a VNS. I'm really on the fence about this as it is life changing forever more. i would like to find people to talk with that has Absent seizures with a VNS that it has help and ones that has a VNS that it hasent help and now has to live withit for the rest of their lives. please help me out with your good or… read more

posted June 8, 2017
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A MyEpilepsyTeam Member

Thank you so much!(:

posted June 15, 2017
A MyEpilepsyTeam Member

I was originally diagnosed with Complex Partial Seizures. Since my Brain Surgery, I'm not sure .

I have abscense. Seizures, some seizures will make parts of my body move or jerk, some will make me vocalize, and every so often I may seizure in my sleep. The seizures range from moderate to mild. On average I seizure once a day.

posted June 10, 2017
A MyEpilepsyTeam Member

I am thanking the same thing kinda scared because if it does not work I would be stuck with it for the rest of my life

posted June 9, 2017
A MyEpilepsyTeam Member

I have a VNS. I still have absent seizures. I'm not sure if it definitely stops them, but when the magnet is used it definitely shortens them.

The downfall is I have it at such a high power that it messes with my breathing when working out and sleeping. I now have to be on a CPAP when I sleep.

But. I did get a tattoo that says "BATTERY OPERATED". So that was fun. 🤷🏻‍♂️

posted December 21, 2023
A MyEpilepsyTeam Member

I have had sizzers all my life

posted June 17, 2018

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