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A MyEpilepsyTeam Member asked a question 💭
Barrie, ON
January 9, 2017
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Answer Summary

Members responding to what they wish people without epilepsy understood shared that public awareness and education are among the biggest... Read more

Members responding to what they wish people without epilepsy understood shared that public awareness and education are among the biggest needs, including knowing that epilepsy is not contagious, that seizures come in many forms beyond convulsions, and that calling for help quickly can be life-saving. Several members described the isolation that comes with the condition, noting that friends and family often avoid asking questions or distance themselves out of fear, and many shared the exhausting reality of long recovery times, post-seizure confusion, and side effects from medications. A recurring theme was resilience, with many members emphasizing the importance of self-advocacy, finding the right specialist, and refusing to let epilepsy define their lives.

A MyEpilepsyTeam Member

Epilepsy has been around since Jesus Christ was alive and helping all the people out on this whole wide world.bevouse if u would Read the Bible it will tell you that the people back when Jesus Christ was alive he heals a lot of the people with epilepsy back then.So it has been around for over thousands of years right now.and I don't think that it's going to be going away from us at all.becose some of us have the gean in are blood for the seizures. I am the only person in my family members who has the dam seizures I don't know why it had to be me.but I kind of figured out why it was me only because I am way to stumbling to let the seizures to kill me for any reason. I have been in a comma. I have been bit by a couple of snakes in my life time but I am to mean to die.are Jesus Christ has other plans for me to do for him on this whole wide world

January 11, 2017
A MyEpilepsyTeam Member

I am to mean to let my seizures to get me down and I will not let them to take over my life that I have.becouse I let my seizures to take over my life one time and it took me a very long time to get my life back the way it was before.So I have to fight with all of my seizures to try to keep them from coming on especially at night time when I am sleeping and it's hot at night time. The cold weather brings on my seizures also so when it's very cold I try not to go outside because of my seizures. I just can't not do nothing because I like to go for long walks to the store and back home

January 11, 2017
A MyEpilepsyTeam Member

Anybody at anytime or any age can be diagnosed with Epilepsy. There are many Celebrities, actors, athletes, and ect. , out there you may know who have epilepsy.

Epilepsy is NOT Contagious. That's a MYTH. Now getting Epilepsy from genetics , is very possible.

Epilepsy has been around for hundreds maybe thousands of years. The majority of the average people of present day, still have no clue what Epilepsy is.

January 10, 2017
A MyEpilepsyTeam Member

That they shouldn't feel embarrassed when hearing information about epilepsy. I find that others are absolutely great when I reveal that I have epilepsy. Cautiously, they might ask a question, then sit there mutely looking like deer in the headlights. It takes a little while for them to loosen up. Also, and I don't know how to change this, I wish they weren't so afraid of seeing a seizure, whatever variety. It's not always pretty, but it passes and I may need a little help.

January 10, 2017
A MyEpilepsyTeam Member

How my mind is not all there after a seizure, it takes me about 3 hours to understand what people are saying after a seizure. I hate when they talk to me right after a seizure it bothers me that i cant answer them. I wish people felt the side effects of seizure drugs. Then they would know why feel like we do.

January 10, 2017

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