Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭

Have anyone taken this medicine or is on it.
What are side effects and how did you cope with it. Does the med work. Any information.
I'm on epilm at the moment but Zonisamide is slowly being added at the same time I'm slowly coming off eplim, so I'm having change over of med and wondered how it will effect me.
It have been making me very tired.
How is what I'm taking at the moment.
Morning... 600mg epilm & 50mg Zonisamide
Afternoon... 300mg epilm
Evening... 600mg epilm & 50mg Zonisamide

posted December 1, 2016
Be the first to like/hug
A MyEpilepsyTeam Member

Balance was a big problem for me, couldn't walk in a straight line and was bumping into things, also everyone said I sounded as if I was drunk, I was aware that I sounded different but no matter how hard I tried I couldn't speak properly, I was take of them by reducing 1a week after I fell against my patio door, I was home on my own and could of gone through it and no one would know. Within 2/3 weeks of being off them the difference was amazing it had taken 10 weeks for bad effects to appear. I've now been taken off Fycompa for similar effects. Hope things settle down soon.x

posted December 5, 2016
A MyEpilepsyTeam Member

I been on it for about a year. I take the 24hr pill before bed. I sleep good. No more nocturnal seizures. Less getting up at night to pee and waking up on the bathroom floor. Less seizures all around. I take tegretal too to keep focal seizures away while I'm awake. I'd say 85% seizure free.

posted December 3, 2016
A MyEpilepsyTeam Member

Doc just raised me from 400 mg Zonegran to 600. 2@ am 4@pm due to seizure activity in last 2 weeks.

posted December 13, 2016
A MyEpilepsyTeam Member

It made me have more seizures

posted December 3, 2016
A MyEpilepsyTeam Member

Hi I took it a few years ago, improved the epilepsy but also some very bad side effects! Acted like a slimming pill and I could hardly eat, therefor ended up looking like an anorexic....and also caused terrible depression, leading to me taking an overdose!! Please go easy on this drug,although saying that it may be the right one for you☺good luck, Lisa x

posted December 2, 2016

Related content

View all
Has Anyone Been On The Meds Listed Below? Has Anyone Had Many Side Effects?
A MyEpilepsyTeam Member asked a question 💭
Does Anyone Now Or Have You Ever Taken Zonisimide? What Do/did You Think? Did It Help?
A MyEpilepsyTeam Member asked a question 💭
Does Anyone Else Take Zonisamide (zonegran) ?
A MyEpilepsyTeam Member asked a question 💭
Already a Member? Log in