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Carbamezapine & Nytol
A MyEpilepsyTeam Member asked a question 💭

Has anyone ever taken Nytol with carbamazepine?? Any side effects etc ? I need a good night sleep but my doctor won't give me anything

posted September 30, 2016
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A MyEpilepsyTeam Member

i briefly used Nytol and i got dizzy. i do a couple of thinks to fall asleep. one is meditation. i just close my eyes and deep breath for a couple of minutes. another is wine or tea. home made wine or tummy time tea will let me fall asleep in about 10 minutes or less.

posted October 1, 2016
A MyEpilepsyTeam Member

I was taking Carbamazepine last year from around May, 2015. As they gradually increased the dose (I had been on Sodium Valporate previous to this), I was also taking Kappa (Levetiracetam). I gradually became very ill and it turned out I had Carbamazepine Toxicity. It gave me terrible Ataxia, to the point that I needed my partner to help me crawl into the shower and help wash me, then crawl out and help dress me!
I had suffered a particularly nasty Tonic-Clonic Seizure in our Kitchen and fallen straight onto my face, hitting my head on the counter in the process. I completely broke my lower Mandible (Jaw) away from the upper one, I had multiple breaks and fractures all across my face and skull. In general I made a mess! I required extensive corrective surgery with Titanium Plates, various Bolts and screws. I found it difficult to sleep with Carbamazepine and tried taking Nytol with it! Its not a good thing to do, as I soon found out! So, I went to my GP and was prescribed a short dose of Zopliclone. I also have Clobazam which I can take if I have Auras, to try and prevent a Seizure. Its not always successful, however, it does help me get to sleep if I take it not long before bed. I usually plug my headphones from my phone in, with some Ambient chilled music as well. That usually works! Consult your GP if you want to take Nytol. I'm sure that they would rather prescribe a short (maybe a week or two) course of medication to help you sleep, however, its important that you realise Diphenahydramine (NYTOL) can reduce your seizure threshold significantly. Take care if using it. To be honest, you're best not to! I'm sure your GP would rather you took something prescribed, that they knew was a better option and safer, to get you back into sleeping well! Good luck and stay safe!

posted September 30, 2016
A MyEpilepsyTeam Member

I have got no sleep with that carbamazepine but now I use a sleep tea from Twinning Tea it is great

posted October 1, 2016
A MyEpilepsyTeam Member

I'm on carbamazepine as well but luckily it doesn't affect my sleeping at all.

posted September 30, 2016
A MyEpilepsyTeam Member

I'm on sleeping pills aswell because my cabamazepine keeps me wide awake

posted September 30, 2016

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