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Members connected deeply over losing memories of their past, with many sharing that both seizures and long-term use of anticonvulsant... Read more
Does anyone have this from the past? My long-term memory works better. I’m in my forties frustrated with my short-term memory. For example, I’ll be talking on the phone and a few hours later my sister asks who I spoke to on the phone and I get frustrated because I forget and really have to think hard so I focus for awhile and then I remember. In order for me to remember what I’ve done for the day, I write what I’ve done right after in a journal, so it helps me a lot. So what type of seizures do you all have and does anyone get memories now too?
@A MyEpilepsyTeam Member You are not losing the memories, but rather, you are having memory recall issues (which is the case with most of us because of anticonvulsants side effects, side effects of other medicines, and stress. And I (and others with seizures disorders) do not have normal short-term memory. Normal short-term memory is accessible until a person goes to sleep. My short-term memories can shift to long-term memories as quickly as seconds after they are created. I take notes whenever possible and have a pen recorder that was given to me by an organization (I think it might have been Easter Seals, but I cannot recall right now). I use the pen recorder in meetings, and I take notes in other conversations (when possible).
Lately I have been having a little problem with forgetfulness, be afraid to tell my husband though. I have to try and remember my age, passwords and so many other things from time to time. Last year I went to Walmart and forgot where I parked the car, although I used my landmark strategy. I cried for about two hours, then when I looked up the soda truck was moving and I saw my vehicle; it was so embarrassing. I was relieved when that car went to the grave yard a month later, and brought an HHR, which has a panic button.
@A MyEpilepsyTeam Member
Not only do I forget names but several people will know me and I won’t have a clue who they are. I’ve had epilepsy for 34 years and struggle with depression to where I’d rather not be living
Welcome to the club! My family and friends hold my memories.
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