Hello I will like some advise, I start it having grandmal since 2011 took me lot neurologist to find out what was wrong with me, till I found a specialist from kaiser, she did, she got it control with lanictal, I have been in lanictal and no seizures, but I went to see my neurologist for my 8 months check up and she told me, I'm in a higher douse on my meds, I'm taking 250 morning 100 afternoon and 300 at night, she said is gonna be a point my body will get used to it and she give me the option⦠read more
Ester, looks like you had pretty good luck with medications right away. The VNS only works for about 1/3 of the patients who get it. Have they tried anything other than Lamictal yet for you?
I see both sides of this issue. I had seizures and had been on plenty of medications over the years until I went with surgery. I said no to the VNS 14 years ago because there were still medications that had not yet been tried. 3 1/2 years ago I went in for surgery to remove damaged brain tissue and it worked out!!
So it really depends on how frequent the seizures are occurring. Just weigh the options whatever you decide.
For me, medicine would help for a while and then I would have continous seizures. The doctors kept adding medications and upping the doses until it got to the point that nothing would help. I went to the Mayo Clinic Hospital in Phoenix for some testing and they found that I was a candidate for surgery. In September of 2010, my right frontal temporal lobe was removed. I went seizure free until February of 15. I don't know what caused them to return, but the seizures I have now are worse. I don't want to scare anyone away from the surgery because I had my life completely back for that short time
I would stay away from surgery in less its the only option left. If the meds are working then stick to them.
I had a VNS implant and I still had seizures. The VNS stopped within a year and had to have it removed but the wire had to stay because it would've been too risky to take it out. So see, surgery doesn't always mean it'll help.
There are a couple of options to try . One is the VNS implant. For many of us it works and many of us not so good.
The other option is the grid test / brain surgery. Before I had my surgery there were many tests they need to do before the surgery. I had me do a 5-7 day EEG , WADDA test , and a MRI . The best thing to do is to find out the best option your you to take.
Do the surgery! I had mine in 1990. I was awake and talking to the surgeon. I was up the next day and out of the hospital in 1 week. I've been seizure free since then. I was off my medicine for a while. When I found out that I was 7 months pregnant, my doctor put me back on medicine. When my son was born, he had a shot of my medicine. This was an order from my neurologist. I'm very glad that I had the surgery. Before the surgery, I was having seizures on a daily basis every morning when I got out of bed. My hands are legs were shaking as soon as I stood up. ππππ . If you have any questions please ask me I will try to answer them from my experience.