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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10985 questions
Has Anyone Had Any Luck With Acupuncture For Treatment In Epilepsy? If So, What Were The Results.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine said Western meds are necessary, but she could help with side effects. She is an MD from Mainland China and knew her stuff. Not sure acupuncture helped, but she was a great person.

posted April 24
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Hi I Live In Chesapeake,VA, I Been Having Trouble Finding A Neurologist In My Area, Can Anyone Give Me Advice Or Help Finding One?
A MyEpilepsyTeam Member asked a question 💭

I been suffering from epilepsy for 15yrs but recently I became homeless so I start moving around which made it hard to see a doctor now that I'm stable I can't see one because there isn't no appointments available until 2 -6 months, I recently had a bad seizure but still can't see a neurologist. I do take medication but one of them is outdated but I can't stop taking it because I risk having another seizure, so I'm confused & don't know what to do? I call all doctors in my area but had no luck… read more

A MyEpilepsyTeam Member

Hang in there and try and stay pos

posted April 24
Start New Meds Called ONTOZRY. Meds That Needs To Ease Into Body System Slowly Dosage Is Small To Increase Anyone Tried These.
A MyEpilepsyTeam Member asked a question 💭

Most meds have not worked or side effects have been extreme. I suffer from seizures that occur with no warnings - during seizures have no idea what is happening and when recovering have no recollection of what has previously happened.

A MyEpilepsyTeam Member

I’m losing weight with Xcopri

posted April 25
What Types Of Seizures Cause Memory Loss And Why?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

TC seizures are of higher risk of doing damage especially if there pro longed.

posted April 24
Any Epileptic Patients Who Dealt W Health Ins Coverage For Broken Teeth? Being Told I Can Only Choose ONE, Meds & Treatment OR Teeth Fixed?
A MyEpilepsyTeam Member asked a question 💭

Trying to find help and resources for repairing my teeth that I’ve broken due to all my seizures. Dentist gave me an estimate of four thousand! I’m beginning to feel really frustrated at the lack of dental coverage someone with epilepsy has in the state of California! 😔 I don’t understand why the damage and injuries from a seizure are not covered with the same insurance that’s providing my medication, or providing my disability, whichever the case you would think they go hand-in-hand, right?

A MyEpilepsyTeam Member

When it comes to medical coverage/treatment for seizures, the medical they provide basically only covers assistance on repair or cure, not replace. Teeth are the only part of the body that cannot… read more

posted April 24
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Primary Care Providers When I Don’t Have Any Insurance, Where Are They Located In San Antonio?
A MyEpilepsyTeam Member asked a question 💭

I recently had an incident and I have spoken with my neurologist - they stated to speak with my PCP. I don’t have one, nor any insurance. There is a big possibility that what happened to me is serious, but I don’t have any money and I don’t want to risk my parents going into bankruptcy because of me depending upon severity. Are there any places I could go besides urgent care or the ER?

A MyEpilepsyTeam Member

Check with your County Social Services and ask them about medical assistance through your state .

posted April 23
Does Anyone Notice How The Weather Has Effect On Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

When the weather is dull and cold I have had more seizures, but if its nice and sunny I find it gives me a boost to do more than I usually do.

A MyEpilepsyTeam Member

I notice heat effects me more. I cannot be in hot tubs or in hot showers due to my diagnosis of Jeavons syndrome.

posted April 25
Does The Sun Bother Anyone Seizures Out Here.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I used to have sunlight filtered through leaves triggering seizures. Had to get prescription sunglasses to wear outside, which helped greatly. I agree with what Randy said. You'll probably find… read more

posted April 24
Has Anyone Ever Tried "Gabapentin" For Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

If so, please tell me if they actually worked and whats the side effects? I'm only scared to take them because I was just told you can be addicted to them. And I'm far from a drug user.

A MyEpilepsyTeam Member

I take 600 mg 3 times a day along with Topamax 2 times a day. This is the best combination that I have been on. They all have side effects but for me, on these they are minimal.

posted 6 days ago
What Tips Do You Have To Help With Seasonal Allergies?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Is there a way you can list those holistic meds.

posted 17 hours ago
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