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Questions & Answers

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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10840 questions
Does Anyone With Partial Epilepsy Have Times When Their Brain Makes Them Do Weird Clicking Or Breath Sounds Out Their Mouth?
A MyEpilepsyTeam Member asked a question 💭

Like a weird reminder your levels are low or need to eat?

posted April 12
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A MyEpilepsyTeam Member

I Never Had That

posted 6 days ago
I Wanted To Ask If Anyone Has Been On Depakote? If So Did You Ever Have Chest Pain With It? Was It Effective?
A MyEpilepsyTeam Member asked a question 💭

I have focal seizures and I have not had success with several meds. Is there any other bloodwork that was effective in diagnosing epilepsy? or non epileptic seizures?

posted April 12
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A MyEpilepsyTeam Member

Hi Samantha
I understand how frustrating it must be to not find anything that will help. I have been on Depakote and have tolerated it well. I also take dilantin and lamictal. I used to take heavier… read more

posted 2 days ago
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Any Physical Therapy Exercises To Help With The Unsteadiness That Comes With Taking Kepra ER For My Absence Seizures?
A MyEpilepsyTeam Member asked a question 💭
posted April 11
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A MyEpilepsyTeam Member

Try using flip-flops or walking without shoes or foot forming shoes. You might have too much ankle support causing weakness around the joints. If you're seeing doubles and/or feeling dizzy Ask your… read more

posted 7 days ago
To Those Taking Xcopri, Have You Guys Had Emotional Struggles?
A MyEpilepsyTeam Member asked a question 💭

Before I took Lexapro (anxiety meds) I had high anxiety and panic attacks. Am I the only one?

posted April 11
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A MyEpilepsyTeam Member

I nevet had anxiety until XCOPRI !

posted 7 days ago
Is EEG Video Worth It Or Is Just A Way For Doctors To Get Insurance Money?
A MyEpilepsyTeam Member asked a question 💭
posted April 10
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A MyEpilepsyTeam Member

https://www.epilepsy.com/sites/default/files/20...
pdf
this is information for Teachers about Epilepsy. It would be very helpful. i was tested and diagnosed because my parents knew I would not… read more

posted 7 days ago
Any Suggestions As To What I Can Do To Help With My Memory? I Have Grand Mal Seizures And They’ve Taken Such A Toll On My Memory.:(
A MyEpilepsyTeam Member asked a question 💭

Grand mal seizures for 30 years. About 12 or so a year.

posted April 10
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A MyEpilepsyTeam Member

Make laminated cards of things that are important to you and always have them near your bed side to look at daily as a habit and reminder

posted April 11
Does Anyone Else Have Seizures Due To A Brain Tumor?
A MyEpilepsyTeam Member asked a question 💭

I had gamma knife performed on a begnin brain tumor. It caused permanent damage to some healthy brain tissue. I've had around 15 seizures due to this. They weren't all the same type. I had some gran mal and focal seizures. It seems like cardio activity and alcohol triggers them sometimes

posted April 9
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A MyEpilepsyTeam Member

Not due to brain tumor but due to Viral Encephalitis. Messed things up in my memory and struggle often.

posted April 10
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Yesterday Was The Total Solar Eclipse, Did Anyone Have Any Positive Or Negative Feelings, Before During Or After The Eclipse?
A MyEpilepsyTeam Member asked a question 💭
posted April 9
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A MyEpilepsyTeam Member

My son was quieter than usual

posted April 11
Does Anyone Know About Us People With Epilepsy If It’s True That We Can Pass Away Quicker Than Someone Without Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
posted April 9
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A MyEpilepsyTeam Member

Epilepsy not even among the top 30 fatal illnesses. The SUDEP is rare, most from wheñ epilepsy just not being treated right.

posted 3 days ago
Has Vns Helped My Neurologist Gave Up Said There Are No More Drugs To Try I've Been Living 25+ Years With Different Types Of Seizures
A MyEpilepsyTeam Member asked a question 💭

My seizures are from my anaplastic astrocytoma brain tumor and nerve damage had surgery 1999,... 33 rounds of radiation and that 15 rounds of chemo been a long journey.. so far radiation has aged my brain 30yrs so I get to experience old age I'm 56 with an 86 Year old brain having to admit I'm disabled and giving up driving was the hardest thing

posted April 9
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A MyEpilepsyTeam Member

Oh god my son just got the vns in Dec 2023 I hope I didn’t make a mistake for him after reading this he’s physically 31 but mentally 4 with autism too and I swear that device doesn’t help him either

posted April 11
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