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Top 10 Search Results for "what scares others about seizures when you know why"

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Can't Keep A Relationship
A MyEpilepsyTeam Member asked a question 💭

I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice

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A MyEpilepsyTeam Member

When I first started dating the man I eventually married, I didn't tell him immediately. I probably told him on the third or fourth date. I'm sure your need to share the info could depend on how well… read more

Chat Room
A MyEpilepsyTeam Member asked a question 💭

I'm 18 years old and have had Absent seizures since I was 2. The many different medicines I have taken have not worked for me. More bad than good. all the side affects. My Dr. is suggesting a VNS. I'm really on the fence about this as it is life changing forever more. i would like to find people to talk with that has Absent seizures with a VNS that it has help and ones that has a VNS that it hasent help and now has to live withit for the rest of their lives. please help me out with your good or… read more

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A MyEpilepsyTeam Member

I have a VNS. I still have absent seizures. I'm not sure if it definitely stops them, but when the magnet is used it definitely shortens them.

The downfall is I have it at such a high power that it… read more

Does Epilepsy Cause Unnatural Fear?
A MyEpilepsyTeam Member asked a question 💭

My son is 7 years old and he does not want to sleep by himself or with a sibling. He wants to sleep with my husband and I all the time. I am wondering is this normal or does it have to do with the epilepsy in some way or form. He says he is scared and just can't sleep on his own. This has been happening since he started having seizures in 2015 a little more now. Before seizures he slept on his own without a problem. He does sometimes complain about hearing noises and just about freaks out with… read more

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A MyEpilepsyTeam Member

It can, but probably because of how many people have fear around you. My parents have been so sheltered. Doing it for so many years, I think they’ve put some fear in me (which is something I’m… read more

I Used To Stare And My Face Would Go Blank. Was That An Aura, I Never Thought I Had Them.
A MyEpilepsyTeam Member asked a question 💭

Mine were called Partial Complex, then Absence, and now Partial Awareness. Not enough good sleep, not eating well or enough, stress and being overheated are triggers.

My day is good.

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A MyEpilepsyTeam Member

I will do that. I did reach out to the Board of Education here in Stamford also.

Do You Feel Uncomfortable Telling People You Have Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
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A MyEpilepsyTeam Member

I don’t have any problem doing that, but I just don’t like the answer I receive. A few days ago I told a person that I have epilepsy, and they decided to not talk to me anymore.

How Many Out There Have Fear Once Asleep Overnight Of Having Seizure Activity To Occur?
A MyEpilepsyTeam Member asked a question 💭
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A MyEpilepsyTeam Member

When I worked in research, it was indicated for patients not taking medications. The likelihood was 1 to 2 % of diagnosed patients. Where I was working it was not indicated in patients that were being… read more

I Am 36 I Have Been Diagnosed Since 12 With Epilepsy. When You Get Older Can Seizures Spread Throughout The Brain?
A MyEpilepsyTeam Member asked a question 💭

I take Clonazepam.5 ml as as needed can I take it with my regular meds instead as a as needed because it stops my seizures right away my other meds just slows them down.

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A MyEpilepsyTeam Member

Yo may be able to just check with your doctor 1st. I say that because some meds may interact with other meds changing actions of other meds or effects it can cause to other problems possible. Such as… read more

Any Tips For Dating And Telling A Date About Your Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

Have my first date tonight after being diagnosed. Not sure how/when to disclose that I have epilepsy or explain it, I'm very nervous about having a seizure in front of him.
Could anyone please give me some advice or tips? Thanks so much :)

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A MyEpilepsyTeam Member

Yes mind has been control 25 yrs sz free

Telling Employers About Your Epilepsy
A MyEpilepsyTeam Member asked a question 💭

How do you go about telling your employer about your seizure disorder?? I have worked in manufacturing working a CNC machine and have worked in warehouses repacking parts or picking/stocking parts using a forklift. I take my medication faithfully and haven't had any grand mal seizures. I do occasionally have had staring spells, but nothing that affects my jobs.

I feel that if I reveal my condition I would be looked over in employment, be treated differently, or be passed up for promotions. I… read more

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A MyEpilepsyTeam Member

David, it is all about understanding them. I never got a job after I found out that I had Epilepsy and the patient's rights laws were in place. When I started working for Massachusetts General… read more

Does Anyone Ever Cry After Seizures?
A MyEpilepsyTeam Member asked a question 💭

Right after the seizures stop, boom? You cry?

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A MyEpilepsyTeam Member

Hang in there and try and stay pos, I can relate, I'm emotional but I handle accordingly,