I'm new to epilepsy & this site. My 17yr old son was diagnosed in February. How do the mommies / parents deal with teenagers , epilepsy & school? Most days i'm not sure to keep my son at home or send him to school? its at a point where i am considering home schooling. Plse advise? I need help
Hi everyone would really appreciate any advice on my situation,
My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood)
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep before the procedure because as you know you have to… read more
Oops my bad but I did have a heck of infection judging by my cbc counts and sed rates
I am taking 3000 mg of Keppra and 450mg of Oxcarbazepine per day. Is there anything to reduce the side effects of these medications? I will do some research and share what I find out. Thank you
I have been on Depakote ER for some time. And just recently found out that the Depakote that I have been taking for my Epilepsy is what could be causing my hair loss. Has anyone else had this problem?
My toes swelled up but didn't stay on it long enough to know if I would get hair loss, loosing hair from something else tho
Lacosamide and Brivaracterim are medications which I've been on for a bit over 3.5years. Like with all my previous medications I am aware that there are side effects
Perampanel was prescribed to me and the side effects which were identified by those who care about me were Anxiety and Irritability, while the Neurologists🧑🎓👨⚕️ who are trained to help people were suggesting to increase perampanel to help stop the seizures. I gradually removed the medication which was a giant risk and it… read more
Been on this medication for over 2 years. Thought it might have been something at the beginning of taking the medication but I still sometimes feel this feeling at night. I’m on 8mg now. Almost tipsy after taking this? Any advise is appreciated, thanks!
We are looking into allowing expanded options for conversations (live free meetings) with friends on this support site. However, we need more friends who are comfortable with the various meeting sites and their apps. We not only are looking for hosts in the range of time zones of the Earth that we have friends scattered in but also people who are skilled in explaining how to get on to the meetings and use of the features to the friends on here are non-techies.
The idea is to allow live… read more
I was denied again for Disability! I been trying for this since 2012 and still no luck. They say i am capable of taking care of myself since my seizure medications are doing good for a few years. Can they do that to one knowing we have Epilepsy and strive daily just to stay on point? It really disappointed me because we are asking for help and well my neighbor got Disability were he ain't suppose to do any type of work and he is doing side jobs cleaning construction work at homes and cleaning… read more