Has anyone have any serious issues with VNS surgery. I already had a previous RNS type of surgery but this time they offered VNS and worried. I actual started working a second full time job to keep a reason to delay. What do you think?
Happy holidays to everyone and your loved ones!
That is something I'm not familiar with. I wish you the best regardless of what you decide.
Has anyone had VNS surgery and how long does it take to slow down your seizures or even stop them. I am planning to get that surgery but afraid if it doesn't help it will still be on the biggest nerve of my body. I workout, jog and have jobs I have to pick up heavy things. Can anyone please help. Spring is coming in the Northeast ☀️ Thanks in advance!
Thanks for your response!
The regular scripts I take are Brivaracteram & Lacosamide which I don't have much faith in. Previously I've stopped taking Lamictal, Perampanel and a few others because I've recognised that those medications weren't helping
I'm disappointed that Doctors, Neurologists are still prescribing medications to people while knowing that they do not know if the medication will work for the person who they are prescribing it to, and that it's dangerous to stop taking an anti-seizure medication due to… read more
The thing/issue about medicines is that there is more information + statistics about all the medications out there and the info. is all available to the doctors. Regarding alternative medications such… read more
I have two full-time jobs and I am always around a lot of people. I work in the Boston Garden on weekends and planning to star in a movie documentary. I had a small seizure in front of a lot people, I was walking around in different directions and even jump over a table. I never wanted to talk about it but, this website and group got me ask about it. I am little scared to go back in front a lot of people to focus in on a movie, do you think people will look at me weird when I go back?
Thank you for the hug.
I am taking 3000 mg of Keppra and 450mg of Oxcarbazepine per day. Is there anything to reduce the side effects of these medications? I will do some research and share what I find out. Thank you
Anyone that feels uneasy about their medicine, talk
to your Doctor & have him explain what the "side effects" would be. Usually
you can find a "different medicine," if the one your
using has… read more
I've had very little appetite lately, forcing myself to eat has been one of the more tricky things for me lately.
Hang in there and try and stay pos
I want to know one more time before I make my final decision before going into my neurologist visit this Aug 6th 2022 about the information people who have taken or are on this medication xcopri have seen in sezuire reduction and what kind of side effects from uncommon to most common you have experienced and any unusual side effects that have happened when taking xcopri and if or any side effects bit had with the medications you we're on . I now take brivact and topiramate an clobazam. If… read more
Sorry to hear that David! It is even worse that your doctor does not already know this because the doctors and pharmacists has the program and databases to make sure to not give a patient medications… read more
Hi, I'm new. My name is Caitlin. I was diagnosed with epilepsy at age 6. And I figured out for myself that my seizures are resistant to medications just last year.
I’ve been on 10 different medications and only 1 kind of helps. I was on Topiramate for 1 1/2 when it stopped working. I’m currently taking oxcarbazepine 1200 mg per day. Have been on it for 2 +/-… read more