what mecications are anyone on this site taking for tle and epilepsy | MyEpilepsyTeam

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Top 10 Search Results for "what mecications are anyone on this site taking for tle"

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After A Seizure In The Morning, Do I Send My Teenager To School Or Not?
A MyEpilepsyTeam Member asked a question 💭

I'm new to epilepsy & this site. My 17yr old son was diagnosed in February. How do the mommies / parents deal with teenagers , epilepsy & school? Most days i'm not sure to keep my son at home or send him to school? its at a point where i am considering home schooling. Plse advise? I need help

A MyEpilepsyTeam Member

Having two children withe epilespy we made sure that the school was aware of the problem and what to do if they ever had a seizure at school. If your child returns to normal after the seizure and is… read more

Has Anyone With A Seizure History Had A Colonoscopy? Please Need Some Advice
A MyEpilepsyTeam Member asked a question 💭

Hi everyone would really appreciate any advice on my situation,

My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood)
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep before the procedure because as you know you have to… read more

A MyEpilepsyTeam Member

Oops my bad but I did have a heck of infection judging by my cbc counts and sed rates

Medication Sid Effects
A MyEpilepsyTeam Member asked a question 💭

I am taking 3000 mg of Keppra and 450mg of Oxcarbazepine per day. Is there anything to reduce the side effects of these medications? I will do some research and share what I find out. Thank you

A MyEpilepsyTeam Member

I have learned one thing about keppra. Some people that take keppra experience what they call “keppra rage”. I know keppra works at least for some people. I have been trying it and I did experience… read more

Hair Loss With Medications.
A MyEpilepsyTeam Member asked a question 💭

I have been on Depakote ER for some time. And just recently found out that the Depakote that I have been taking for my Epilepsy is what could be causing my hair loss. Has anyone else had this problem?

A MyEpilepsyTeam Member

My toes swelled up but didn't stay on it long enough to know if I would get hair loss, loosing hair from something else tho

Side Effects Of Meds:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9185788/
A MyEpilepsyTeam Member asked a question 💭

Lacosamide and Brivaracterim are medications which I've been on for a bit over 3.5years. Like with all my previous medications I am aware that there are side effects
Perampanel was prescribed to me and the side effects which were identified by those who care about me were Anxiety and Irritability, while the Neurologists🧑‍🎓👨‍⚕️ who are trained to help people were suggesting to increase perampanel to help stop the seizures. I gradually removed the medication which was a giant risk and it… read more

A MyEpilepsyTeam Member

epileptologists might be better for you to get the right medications and dosages
My general neuro for 50 ys retired and I went to a Epilepsy clinic in NYC
And they tried me on medications I never… read more

Anyone Taking Zonisamide For Complex Partial Szs? How Is It Working For You, What Dosage Are You On And Any Side Effects? Thanks
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My son had a terrible reaction to zonisamide after taking it for 6 months. He got really depressed had cognitive slowing and processing and ended up in the ER and inpatient psychiatric hospital for… read more

I'm Afraid Of The Side Effects Of Epilepsy Meds. Am I Making A Mountain Out Of A Mole Hill?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I understand being concerned of your medication. The way I see to make it easier to deal with is knowing that everything you do in life has side effects. Such as walking you may stub your toe, turning… read more

Has Anyone Felt Almost A ‘high’ Feeling From Fycompa?
A MyEpilepsyTeam Member asked a question 💭

Been on this medication for over 2 years. Thought it might have been something at the beginning of taking the medication but I still sometimes feel this feeling at night. I’m on 8mg now. Almost tipsy after taking this? Any advise is appreciated, thanks!

A MyEpilepsyTeam Member

Hi Ciara, here too. It really affects gait. I'm on 12mg and you need to be in bed. When I started on it years ago, my neurologist gave me hell for not being in bed asap. I use to take it about 20mins… read more

Are You Skilled In The Use Of ZOOM, Skype, Google Meet, Or Any Of The Other Meeting Sites/apps That Offer Free Meeting Options?
A MyEpilepsyTeam Member asked a question 💭

We are looking into allowing expanded options for conversations (live free meetings) with friends on this support site. However, we need more friends who are comfortable with the various meeting sites and their apps. We not only are looking for hosts in the range of time zones of the Earth that we have friends scattered in but also people who are skilled in explaining how to get on to the meetings and use of the features to the friends on here are non-techies.

The idea is to allow live… read more

A MyEpilepsyTeam Member

I hope

Disability
A MyEpilepsyTeam Member asked a question 💭

I was denied again for Disability! I been trying for this since 2012 and still no luck. They say i am capable of taking care of myself since my seizure medications are doing good for a few years. Can they do that to one knowing we have Epilepsy and strive daily just to stay on point? It really disappointed me because we are asking for help and well my neighbor got Disability were he ain't suppose to do any type of work and he is doing side jobs cleaning construction work at homes and cleaning… read more

A MyEpilepsyTeam Member

LaRonda it would bother me too if I saw a person get on disability and then saw them getting paid for all those side jobs!!!! Those really are the kinda people that are apparently not really disabled… read more