Now have sz at night they added Briviac they are gone again!
Not knowing the area is a bad thing
WATCH OUT FOR THESE AED'S!
is this available somewhere I don’t have to sign up and login for?
I think I have a pattern to my tonic clonic nocturnal seizures, which is one seizure every 7 to 10 days. I'm caught in this dilemna of needing to deduce a pattern to prepare for the seizure or seizures, or continue to convince myself to stay seizure free. Does that make sense? It's like the mind - literally - is that powerful.
There is no food, drink, activity, etc ... that triggers these seizures (as far as I can tell). Also, I continue to take my medications on schedule and have had… read more
Understanding your triggers are helpful. I have found Mine are triggered by over stimulation throughput the week. My mind and body can only take on so much unnecessary energy waisted. Normies seem to… read more
My boyfriend and I have been together over 12 years. He is wonderful and has helped me manage with my epilepsy. So relationships are definitely possible
I have an idea for a new program called Epilepsy Dating. Why not create a program so single epileptic members can meet others? They can search to meet a person of the same or oposite sex, provide a profile , photo and message. Many epileptic members have a hard time living alone.
I couldn’t even turn on zoom.
So, I just got my EEG results back & the doctor said I'm fine, the medicine's working, & I'm keeping everything as it is. He also said he didn't see any signs of concentration issues or anything like that. I don't know what it is, but once in a while I just get this feeling that I'm dizzy, or I don't know what's going on around me, and my heart starts beating & I'm scared I might have a seizure. I don't like this feeling, because it's hard for me to concentrate on my work or anything I'm doing.
Oh..WOW!!! I thought I was hallucinations when that happen to me. I was so worried like is there a seizure coming 😫
I have only been diagnosed for two months and am really finding it hard to stop my worrying and just would like to know if anyone has any advice about how they began to accept their diagnoses? Thank you
Mine is a Rollator, not one of those flimy ones made of metal. I was using someone elese's a goo while back. We have a rug in our doorway. It was snagged, and I fell on my falce. They called 911… read more
This has been dwelling on my mind for years. I don't think it will ever stop. How often do you all work, or can you work? I have a job, but I have to call in many days because of seizures. So, I don't make much. Plus, last night, my boyfriend said that "I was like a roommate who pays less than half of the bills". We were arguing about my low libido (roommate). I guess he's just had enough. Either way, I feel bad about everything. I want to be able to work more. I want to make more money. I want… read more
I was forced to retire because of my seizure disorder.