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Epilepsy

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Hair Loss

Hair Loss

Has your hair ever fallen out when using depicote?

A MyEpilepsyTeam Member said:

Tonight lost like a chunk of my hair because of it.

posted over 3 years ago

Anyone Else Suffer With Insomnia?

Anyone Else Suffer With Insomnia?

Hate not being able to sleep, unsure if it's my meds or not because as far as I know I've always had insomnia from being a baby. I'm on lamotrigine and keppra. Thanks x

A MyEpilepsyTeam Member said:

YES ! 24/7 . I'm alway the last one in bed. On school days I stay up until my kids are off to school. On the weekends I just stay up until my body… read more

posted about 3 years ago

Migraines In The Morning?

Migraines In The Morning?

Lately I've been having awful migraines when I wake up. Doesn't matter how well I sleep I'll get this headache. Does anyone suffer from these because my epilepsy nurse has said it could be a partial seizure?

A MyEpilepsyTeam Member said:

No

posted over 4 years ago

Medical Alert System?

Medical Alert System?

I been thinking about getting an alert system since im home alone. My service dog can be trained to press the button if i have a seizure and need help. He alerts to some seizures and barks if im down longer than 5min or goes and find the nearest person.
Problem is my family has lack of communication skills. They ignore my service dog when he is trying to tell them something! Going back to me having no support at home. My question i guess is... if i can't get them to listen to me or my… read more

A MyEpilepsyTeam Member said:

I have an app on my Apple Watch that SUPPOSEDLY will alert anyone you program it to with a message of your choosing and I believe can alert emergency… read more

posted over 2 years ago

Any One Else Have Jeavons Syndrome And No Relief With Meds

Any One Else Have Jeavons Syndrome And No Relief With Meds

My Daughter has Jeavons and not only no meds have worked but she's in a mental fog .

A MyEpilepsyTeam Member said:

My son has tried Keppra, sodium valproate, depacote, ethosuximide, but none of thrm worked, and sone if the side effects were awful. He has been on read more

posted almost 2 years ago

Marijuana

Marijuana

For those taking it, are there different strains that are use for epilepsy or just the "Charlotte's Web"? Everything is still kind of confusing since Marijuana is being used for different medical issues and not all doctors agree with the use. Our state is pasting laws and soon it will be able to be used here. I'm not sure what to think of it.

A MyEpilepsyTeam Member said:

I don't know if it can control my seizures by it self but smoking it when I did helped with my depression and when I went for days without it my… read more

posted over 3 years ago

What Medicines Have Been Most Effective For Tonic Clinic Seizures?

What Medicines Have Been Most Effective For Tonic Clinic Seizures?

Grand mal seizures are the same as tonic clinic. I’m seeing a neurologist next week and am interested in the fastest most effective medicines that have worked for those with the same issue.

A MyEpilepsyTeam Member said:

New on Vimpat.

posted 11 months ago

Carbatrol

Carbatrol

I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?

A MyEpilepsyTeam Member said:

Talk to your neurologist about tegretol. It is suppose to due damage to your liver. My Neuro. Wanted to take me off but didn’t yet.

posted 7 days ago

Medicine Reminder?

Medicine Reminder?

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

A MyEpilepsyTeam Member said:

Tell me happened?

posted 17 days ago

Does Or Has Anyone Ever Felt Embarrassed About Telling Someone About Their Seizures?

Does Or Has Anyone Ever Felt Embarrassed About Telling Someone About Their Seizures?

Or on another note, has anyone ever been a little scared of telling someone you feel like you’re about to have one but end up not? Sometimes I feel like I shouldn’t tell my parents or sister because then they’re going to overreact a little after the feeling went completely away.

A MyEpilepsyTeam Member said:

Yes! All the time! It's bad enough telling people you know, but telling people you only know socially is even worse.

posted 7 days ago