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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
10923 questions
Since I Am Not The One Having The Actual Seizures I’m Curious To Know What You All Feel And See During Yours I Only Imagine
A MyEpilepsyTeam Member asked a question 💭

Like flashing lights or darkness is it equivalent to like having surgery without you actually knowing what is going on .. my son can’t tell me so maybe you all could clue me in please is their pain are your emotions all over the place my son can’t tell me cuz of his autism too

A MyEpilepsyTeam Member

That's when the pain comes in. You feel nothing during the seizure, in fact, I'm told that I'm freakishly strong. It's after when my jaw was sideways under my ear. Or herniating your desk from… read more

posted 3 hours ago
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I Have This Place In My Mind Where I Go Time To Time It's Not A Nice Place And I Don't Like It All
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

You’re welcome. Well I am here for you if you need to talk.

posted 6 hours ago
Do People Fear Everyday 🤔
A MyEpilepsyTeam Member asked a question 💭

How do you feel after a seizure when you’d done well going without one for a long time.. I feel scared & it’s the not knowing I guess. I dread another will happen, I’m guessing that normal?

A MyEpilepsyTeam Member

For years I’ve had my MedicAlert bracelet, with its medallion with the emergency phone number. That way, no matter where I am in a seizure emergency, an emergency responder can access my health… read more

posted 8 hours ago
Did Anyones Other App Do A Update Today Or Is Just Mine
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I was disconnected from the application, I use the website.

posted 10 hours ago
Does Anyone Have The Neuropace Rns System? If So What’s Your Opinion On It?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Thank you for your input.

posted 1 day ago
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My Question Is This? I Always Feel Guilty When My Husband Mother Calls And We Have Made Plans To Go Out And She Needs Him For Some Reason.
A MyEpilepsyTeam Member asked a question 💭

This is what I mean. I am due to go to the hospital Monday. My husband and I had planned to go Saturday to get anything I might need for my stay. He just called me and says she wants him to drive them to Columbia to fix his ,sister gate. This is his twin. I am tired of him calling me and saying would you mind? In other words do what she wants. This is not something that is major. His father is going but he is on dialysis. He used to be able to do this type of work. I would always give in, but I… read more

A MyEpilepsyTeam Member

When we consider those vows that are said at the time of marriage "in sickness and in health" those words are said under Father God. I am a Christian but my thoughts of marriage are when two persons… read more

posted 14 hours ago
How Does Epilepsy Effect Your Sex Life? Are You Not In The Mood For A While After A Seizure? If So How Long?
A MyEpilepsyTeam Member asked a question 💭

I’m single ,but I’m not in the mood after a seizure

A MyEpilepsyTeam Member

Single for 8 years so no sex for 8 years xD 😆. But during the time I had relationships it didn't affect my sex life

posted 15 hours ago (edited)
We Are Looking Into A Service Dog For Our Daughter. Can You Share Your Successes And Experiences (good Or Bad ) With Having A Service Dog.
A MyEpilepsyTeam Member asked a question 💭

Our kiddo has Epilepsy, autism ans elective mutetism. Anxiety is a key factor in her inability to participate in activities and basically leave our home.

Has Anyone Had Any Luck With Acupuncture For Treatment In Epilepsy? If So, What Were The Results.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine said Western meds are necessary, but she could help with side effects. She is an MD from Mainland China and knew her stuff. Not sure acupuncture helped, but she was a great person.

posted 2 days ago
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Hi I Live In Chesapeake,VA, I Been Having Trouble Finding A Neurologist In My Area, Can Anyone Give Me Advice Or Help Finding One?
A MyEpilepsyTeam Member asked a question 💭

I been suffering from epilepsy for 15yrs but recently I became homeless so I start moving around which made it hard to see a doctor now that I'm stable I can't see one because there isn't no appointments available until 2 -6 months, I recently had a bad seizure but still can't see a neurologist. I do take medication but one of them is outdated but I can't stop taking it because I risk having another seizure, so I'm confused & don't know what to do? I call all doctors in my area but had no luck… read more

A MyEpilepsyTeam Member

Hang in there and try and stay pos

posted 2 days ago
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