Currently trying it for my own because I know it CAN help, but I personally don't know if it does, it has me feeling good though
2 days ago (edited)
First of all, juggling epilepsy with a 3-year-old and a 4-month-old? That's a lot — and it makes complete sense that you want to feel present and clear-headed for your little ones. Your feelings are completely valid.
On the CBD front, some MyEpilepsyTeam members have explored it, and there is actually an FDA-approved Show Full Answer
First of all, juggling epilepsy with a 3-year-old and a 4-month-old? That's a lot — and it makes complete sense that you want to feel present and clear-headed for your little ones. Your feelings are completely valid.
On the CBD front, some MyEpilepsyTeam members have explored it, and there is actually an FDA-approved CBD-based medication called Epidiolex for certain seizure conditions. However, CBD — even over-the-counter versions — can interact with anti-seizure medications, so it's really important to loop in your neurologist before trying anything. As for mushroom coffee, there isn't enough epilepsy-specific research to say it's safe alongside anti-seizure medications. It's best to check with your doctor before adding it to your routine.
Regarding feeling "drugged up" — that's a real and common concern. A few things worth bringing up with your care team:
- Ask whether your dose could be adjusted before adding a second medication
- Ask about side effect management options
- Request more regular check-ins so you feel supported, not just prescribed to
You deserve a doctor who listens. If you feel consistently dismissed, seeking a second neurological opinion is absolutely reasonable.
2 days ago
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